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Autism and Paleo Tips and Links... Do you have a favorite resource? (not an Aspie)

by (1471)
Updated about 13 hours ago
Created October 07, 2011 at 10:59 PM

I have read alot of links about Autism and Paleo from this site. Was there one or two particular sites, blogs, or books that you used for information that helped you or someone you love. I have a friends family memeber that is using Gluten Free diet but I am not sure about the rest of the diet. Since I dont know them but wanted to offer info she may not have which would be greatly appreciated I am told, I thought I would come to you and ask for your advice.

Since I am not sure if she is familiar with Paleo/Primal I offered to let her family read the books I have but I am sure there are plenty of real life examples of tips, tricks, and support as well as possible specific info for Autims she may not have.

Thanks for any time and effort you put into this....I will be sending her the Paleo Hacks site and want to use this post as an introduction to the wonderful smarty pants we have here!

Theresa

edited ....no aspergers but I dont know her diagnosis.

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3703 · February 21, 2012 at 8:58 AM

Korion. That explains your brilliance!!!! I'd disagree. Recently I was grateful to meet and have dinner with Dave Asprey (and other Paleo luminaries). He cured his Aspie. He's probably MORE brilliant. Haaaaaa. But I wouldn't know. He's definitely very functional. There probably is a 'price'.... Treatment takes diligence. See my link he answers my questions which pertains to this asd/aspie/ADHD thread here: http://www.bulletproofexec.com/podcast-transcript-12-sexification-with-roger-lawson/9/

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8933 · February 20, 2012 at 4:12 PM

I was afraid of the IQ : I've always been good at maths, and was afraid that'd disappear if I cured my autism.

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25467 · October 14, 2011 at 2:53 AM

Plus 10000000000000 Grace.

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3703 · October 13, 2011 at 11:49 PM

VERY COOL!!!!!!

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18635 · October 13, 2011 at 10:29 PM

Last paragraph is good...first one is not.

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1471 · October 13, 2011 at 2:05 AM

best answer, I think I click on the check mark as the accepted answer and the points go to that person. Its pretty cool! I offered 100 points and paleo hacks puts in 50 points.

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3703 · October 13, 2011 at 12:20 AM

What's a bounty winner? Wasn't the question RE: fave source? WHo gets the points, person asking? or answering? both? thanks! G

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3703 · October 12, 2011 at 5:48 AM

FYI Campbell-McBride will be at AHS12, my understanding. Maybe she'll have more updates for the refractory cases? Or how to bridge our gap in meeting the challenges? On James Adams advised document there is also family surveys which assessed what they think worked the best for improved autistic symptoms. Gillian and us do everything on that list. No rx except I do fluconazole prn. We do low dose Nature-throid which helped missy'N' my ADHD (mild) 2nd child with focus, clarity and gut. It's only temp until aldehydes and inflammation related to the 13 amalgams she used to have are eliminated.

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3703 · October 12, 2011 at 5:40 AM

Our practitioner like Campbell McBride works on chelation for literally 2-3 yrs. She was surprised in fact Gillian is so highly functioning (neuro-typical now and perhaps even more typicaly than atypical neighbor kids on the 100% S.A.D.). The chelation is very safe, slow and gradual. To me it is like 'juicing' in a pill (3 pills AM, 3 pills PM). GAPS is great but the it's a full time job. Currently I'm in China so I'm limited by even access to wholesome, pesticide-free produce, much less herbs or other common greener.

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3703 · October 12, 2011 at 5:36 AM

Yes I'd agree -- have met several indivs (bloggers) who are aspie or adhd despite best paleo efforts, gut management and targeted nutraceuticals (um. like me too) without full improvement of symptoms. Chelation is a process that requires patience and a bunch of good glutathione. Once deep seated candida and clostridial biofilms get entrenched, I do suspect the challenges are not limited. Definitely it appears certain kids (and paleohackers) can overchome these however. Genetics?? I dunno but I wish I had some!! Or to transplant into my kids!!

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3703 · October 12, 2011 at 5:32 AM

Robb Wolf has also said on his blog (or podcast) that he'd delay and do a diff vacc schedule.

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3703 · October 12, 2011 at 5:31 AM

Matthew -- A lot of vaccines are bogus and you can't believe every vaccine study that Big Pharma publishes. Here's what Chris Kresser thinks of flu vaccines: http://twitter.com/chriskresser/statuses/7815295003529217

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3703 · October 12, 2011 at 5:24 AM

Satya, Several people have noticed that sugar (table) is fine w/gut issues and I tried it. My gut was the same and in fact perhaps a little better (took digestive enzymes). Rice sometimes will give me bloat however (even w/enzymes). Honey makes sense.

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2026 · October 12, 2011 at 3:34 AM

About half of the ASD kids I worked with last summer had some form of nutritional management, two had tried OTC chelation, neither had positive results.

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2026 · October 12, 2011 at 3:25 AM

Regarding oral chelation, I just did a fresh search for articles, and I found exactly one which supported the use of only one, APPROVED RX drug for chelation as an off-label treatment for autism. Everything else, including a release from the FDA (for whatever that is worth), seemed to point out that chelation drugs can cause dangerous dehydration, kidney damage or heart attacks. "Supplements" are unregulated and truly may contain anything, from none of what is advertised to 1000 times the dosage on the label. I don't want you spending $ on snake oil or accidentally poisoning your niece.

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2026 · October 12, 2011 at 3:01 AM

The reason I support the gaps diet is that it is a safe-and-sane way to help with the real issue of leaky gut. I'm not totally convinced that "gut and psychology syndrome" is as simple as it's been made out to be, but the diet appears to me to be a good way of healing a damaged gut, even if it's not "leaky" I know a lot of things in my body and mind improved when I got rid of gluten (I came to paleo and then discovered I was celiac), so I don't discount the effect that a crummy digestive system can have on the mind and body.

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2026 · October 12, 2011 at 2:56 AM

Majkinetor, I would like to see any evidence you have. I've never seen any peer-reviewed research...

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3703 · October 11, 2011 at 3:14 AM

One one the best reviews by an expert in India where metal intoxication is rampant from unrestricted environmental pollution and human rights appear to be non-existent. The diagrams and scientific citations are WAY MORE detailed than even the extensive pages provided Dr. Natasha Campbell-McBride: http://www.icmr.nic.in/ijmr/2008/october/1011.pdf

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3703 · October 11, 2011 at 3:12 AM

http://www.icmr.nic.in/ijmr/2008/october/1011.pdf [the refs are WAY MORE detailed than even the extensive pages provided Dr. Natasha Campbell-McBrides]

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3703 · October 11, 2011 at 3:11 AM

James Adams listed melatonin as an adjunct above on the resources. ADHD and ASD kids/adults have wacko melatonin according to the studies which can lead to downstream problems. Melatonin supplementation has been shown to be helpful not just in sleep but also ox stress and even chelating. My kids (and I sometimes) take the Trader Joe's 0.5mg chewable mint melatonins... http://www.ncbi.nlm.nih.gov/pubmed?term=melatonin%2C%20attention%20deficit

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3703 · October 11, 2011 at 3:07 AM

Hope it doesn't seem like SPAM! I love this paleo autism thread and hope it will be rich in inspiring stories and detailed sources w/the rest of PH's threads on -- dysbiosis, SIBO, GAPS, fodmaps, candida, mercury, thyroid, adrenal, etc!! They're all interrelated.

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1471 · October 11, 2011 at 12:27 AM

I knew this wonderful group would step up. These parents can probably make more heads and tails of this information as I understant hey are already GF and have this child on a very specific diet. Hopefully they will be able to gain more info here. Please keep it coming. Theresa

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376 · October 10, 2011 at 8:01 PM

@Grace re honey, I think the reasoning behind its use is that it is made up of monosaccharides. Not sure if that is true from GAPS perspective, but it is from SCD perspective, which is very similar to GAPS and precedes it. Much more info at the site http://www.breakingtheviciouscycle.info

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78422 · October 10, 2011 at 6:44 PM

@Matthew: *Please keep such dangerous nonsense off this site* - I was talking about newborns. You can give vaccines after first year when the system is prepared. Focus should be nutrition of mother/baby.

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7540 · October 10, 2011 at 5:35 PM

People were not "fine" in the past. There was a time when, if you had, say, 5 kids, it was reasonable to expect that at least one would die in childhood from one of the diseases that we routinely vaccinate against. Diseases like polio can have devastating sequelae. BTW those immunocompromised people you're using to support your "argument"- they're the ones who are most affected by your selfish decision not to vaccinate, since they rely on herd immunity. Your kid may recover from measles, but a leukemia patient or someone with a primary immune deficiency disease might not be so lucky.

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19220 · October 10, 2011 at 3:52 PM

"If it is so effective then why not vacc the boys" - COST. It is an expensive new type of vaccine to make. Health care agencies rarely have as much money to spend as they would like to.

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19220 · October 10, 2011 at 3:50 PM

They were outbreaks due to non-vaccinated children. Real children ended up in hospital. Just because people "were fine" in the past does that mean we should not try to improve on the future? No vaccine works in everyone, that is why we rely on herd immunity. I believe the main drive behind the Hep B vaccine is that it has been shown to lower rates of liver cancer many years later, Hep B is a major cause of liver cancer.

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3703 · October 10, 2011 at 3:42 PM

The HPV vaccine is a ludicrous joke. If it is so effective then why not vacc the boys -- the source???

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3703 · October 10, 2011 at 3:35 PM

Agree -- Austism and ADHD start often w/the mom -- that is what McBride drove home for me too (hard to take)

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3703 · October 10, 2011 at 3:33 PM

Matthew -- did you get vacc's at birth? I didn't and I'm fine. In fact my WHOLE GENERATION. If it weren't for the media, were those measle cases epidemic? or was it just the media and expected bell-shaped incidence? People get vaccines and they also fail to 'take' esp if immunocompromised...

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19220 · October 10, 2011 at 3:29 PM

Cases of measles increased in the UK due to the MMR scare stories. Legitimate arguments can be made about the effectiveness of individual vaccines, particularly public health interventions. However vaccines can produced protective immunity when given at birth. You can catch Hep B from normal sexual contact with someone, prostitution or drug abuse is not required. The big picture does not show that vaccines are problematic. The internet is full of misinformation on these issues.

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3703 · October 10, 2011 at 2:56 PM

Matthew -- I appreciate ur concern. Like maj, I don't really care. The big picture shows that vaccines are problematic. For instance why give a baby Hep B??? No one gets Hep B except from healthcare exposures and PROSTITUTION/IVDRUGABUSE. Is someone so sure their baby will be a doctor or RN that Hep B Vacc is needed AT BIRTH when baby has no immunity (relies on mom's IgM)...???! The at-birth schedule only started recently and this is for PROFIT not preventive care.

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3703 · October 10, 2011 at 2:53 PM

I've wondered by McBride keeps honey in the protocol -- do you do honey Satya? I kinda suspect it is to stay out of ketosis which is hard on adrenals (which are already stressed out)

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376 · October 10, 2011 at 2:47 PM

Regarding a ketogenic diet, I agree it is helpful, but it can also kill off gut flora if taken to the extreme of all meat: http://www.jstor.org/pss/30081508 so might be best to combine it with fermented plant and/or animal foods.

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19220 · October 10, 2011 at 2:46 PM

@majkinetor - "For breastfed babies, vaccines are useless" Please keep such dangerous nonsense off this site.

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19220 · October 10, 2011 at 2:45 PM

@grace - Wakefield is a disgrace to his profession. I am sorry that you have been taken in by all the miss-information he started.

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3703 · October 10, 2011 at 2:10 PM

Moonablaze, The books that my sister read sound a lot to me like the kids you work with -- no clinical improvements. None (that my sister could discern by reading the whole book) had chelation done. Not even old-school IV chelation... (which I am hesitant since there are better tools at our disposal now)

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3703 · October 10, 2011 at 1:55 PM

http://www.behavioralandbrainfunctions.com/content/5/1/44

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3703 · October 10, 2011 at 1:55 PM

Lustig is wrong! HFCS is horrific for MANY REASONS including being a big source of heavy metal...besides giving kids fatty liver. 'Up until recently, HFCS manufacturers used "mercury grade" caustic soda from mercury cell chlor-alkali plants to make their product and as a result consumers were likely exposed to low levels of mercury over time [55]. Using the results of analytical testing conducted on FDA collected samples of commercial HFCS for total mercury and the US per capita consumption of HFCS, Dufault et al. estimated daily mercury intakes from HFCS ranging up to 28 ug [55,56].'

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3703 · October 10, 2011 at 1:51 PM

Why does one think vaccine manufacturers REMOVED MERCURY FROM PEDI VACCINATION SCHEDULES RECENTLY?????!!! And shipped unused to India, Korea (new onset autism is like 1:80~~), and China.

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3703 · October 10, 2011 at 1:49 PM

m-- thanks!!! sounds like a reasonable vacc-adjuvant! We do vit D -- I think that works too but no evidence yet.

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376 · October 10, 2011 at 1:48 PM

http://www.gutandpsychologysyndrome.com/wp-content/uploads/2009/11/the-full-gaps-diet.pdf <--For those wanting the diet summary.

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3703 · October 10, 2011 at 1:39 PM

Austism and ADHD start often w/the mom -- that is McBride drove home.

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78422 · October 10, 2011 at 1:36 PM

... and now we have blush response.... :)

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3703 · October 10, 2011 at 1:36 PM

My sis honestly does recall if Gillian had the MMR but she doesn't care because Gillian from Day 1 was not only a 'different' baby but had the signs of other autistic/spectrum babies.

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3703 · October 10, 2011 at 1:34 PM

I'll ck out Body Ecology!! Found a bunch of fermentation blogs but haven't had time... (looks like a full time job honestly like bone brothing)

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3703 · October 10, 2011 at 1:33 PM

YOU MUST HAVE ETERNAL PATIENCE!! My sister home-schools to control the environment and she'd agree low sensory stimuli are best (teacher has ADD). Her husband on the other hand (former Marine) gets his *ss handed daily by the high school kids he teaches HAAA! IMHO there are indeed multiple causes. Like you I was also shocked by the microbial aspects!!! I used McBride's book as the foundation for a talk on gut microbiota at AHS (my blog has links, comments). Can't tell you how many grrrls I know with YEAST YEAST YEAST and SINUS YEAST. It does explain their kids from this viewpoint.

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376 · October 10, 2011 at 1:28 PM

Will be interesting to see if these changes in vaccines will help reduce incidence of asd in the future. Certainly I don't want to downplay the importance of finding the cause(s) of asd.

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376 · October 10, 2011 at 1:26 PM

You are a great advocate for your niece, Grace. May want to edit to Campbell-McBride for author of GAPS. Re vaccines, I was in the military before DS conception and had been given a load of vaccines all at once then. And of course, did all the recommended for ds, which were lumped together. Not making claims about anything, but when your life is influenced by autism, and you begin to see commonalities with other families, it really makes you wonder. As I said, we families are looking for solutions, mainly. Nothing we can do now to change whatever happened to our kids.

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3703 · October 10, 2011 at 1:17 PM

OF COURSE. My sister is relentless (for answers) and truly blessed and gifted. We lost our mom when we were young and she is kinda more nurturing than I and made up for it. Our parents are physicians as well. SIGH. We all had signs/symptoms of gluten intolerance as kids. All 4 of us kids have had an autoimmune disorder (my youngest sis is probably undx'd bipolar).

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3703 · October 10, 2011 at 1:14 PM

majkinetor... can I just DOWNLOAD UR FR*CKIN HAWWT BRAIN. I've found that I've reviewed a lot of the SAME INFO AS YOU!! Could've saved time...

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376 · October 10, 2011 at 1:13 PM

I homeschooled too. Both kids. Low key environment is really good for asd, imo. I am no expert on autism, but the increase in cases is very alarming, and I simply cannot believe it is better diagnosis. I went to school, there were not cases of autism like now. So many possibilities to speculate about. Could be multiple causes. But the microbial angle is very very compelling to my personal experience.

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3703 · October 10, 2011 at 1:12 PM

Every 'guru' has a kernel of truth *haa* that is why they are gurus. I forgot to mention my niece in with the paleo plan did vitamin D, fish oil and magnesium as well.

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376 · October 10, 2011 at 1:05 PM

Grace, I will end up writing too much here, lol, but certainly we can talk a bit. He still has some healing to do, but I see improvement even today. He is at home, completed trigonometry with me. If I would have started sooner, I am sure things would have been better. But we do the best we can with info at hand, right? I make kraut, kimchi, pickled veggies of many varieties. Just got Body Ecology culture starter so that I can use less salt than required with wild ferments - well, maybe not required, but I hate throwing out food that gets mold as not enough salt/acid to keep them away.

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3703 · October 10, 2011 at 1:04 PM

All these 'neolithic' comprehensive tools are now available (not 20 yrs ago, or even 5) but above all I think the community is most important by sharing our stories, even the 'failures' because some factor was overlooked or missed.

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3703 · October 10, 2011 at 1:02 PM

Don't be hard on yourself!!!! OMG you have had unprecendented improvements for your son it appears to me!!! (I tell my sister your pain will be somone's gain (education-wise; she home-schools). It is unfortunate your son was born before the world-wide-web connected like minds. Do you think that kids are more and more sickly as you mentioned because of the epigenetic links to increasing # sickly moms?? My sis has had yeast for yrs; finally a DNA stool analysis (eg metametrix,genova) was 2++ candida DNA. I also have candida DNA ++++ but (-)culture coz pathogenic yeast often won't culture.

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376 · October 10, 2011 at 12:58 PM

Grace, it's really tough because it can be such a major dietary transition for a family. But if you continue the junk with a leaky gut, as you say, things will not get as good as they could going to whole GAPS 9 yards. In my case, I found out I am gluten intolerant too (surprise surprise), so am glad I went along on this journey. But for asd kids, time can be of essence in terms of making the most difference possible. Best to really attack the situation head on to the extent possible as soon as possible. Paleo foods are where it's at.

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78422 · October 10, 2011 at 12:56 PM

Check out "Vitamin C and Forced Vaccination: Neutralizing Toxicity while Optimizing Response" http://curezone.com/forums/fm.asp?i=1529534#i

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78422 · October 10, 2011 at 12:55 PM

Check out this link: http://curezone.com/forums/fm.asp?i=1529534#i

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3703 · October 10, 2011 at 12:54 PM

Congratulations with your 23 yo son!!! May I request and ask how functional are his abilities? What behavioral/hearing/ visual/ neurological rehab or re-training worked? The ferments sound delicious! What wild ferments do you make and any book/website links would you recommend? I haven't reviewed all the recipes that go along with GAPS yet like kermiss and others. I struggle with just making bone broths every day or every other day!

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78422 · October 10, 2011 at 12:54 PM

BTW, there are other options to reduce vaccination damage apart from separating shots - 7 days before and 7 days after vaccine u use several grams of liposhperic vitamin c and liposhperic GSH.

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78422 · October 10, 2011 at 12:48 PM

It can be anything really, not only vaccines, but IMO its combination of all - lack of nutrients in soil, babies fed adapted food, bad mother/father diet full of carbs and junk food, vaccines on top of that administering aluminium, sugar, animal viruses directly into the vein.....

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376 · October 10, 2011 at 12:45 PM

Campbell-McBride suggests that if mother's microbial health compromised, infant may suffer damage. Infant depends on mother's microbes at birth. If not healthy, could set stage for gut problems. I did have a yeast infection when pregnant with DS, fwiw. I actually have learned so much from GAPS in recent months. I can see possibilities I had not considered before. Probably would have helped DS better had I the info then.

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3703 · October 10, 2011 at 12:41 PM

I agree. GFCF (esp high refined tapicoa, rice, grain whatever) doesn't work. They eat GF donuts all day. BIG FAIL for these kids whose mom's are perpetuating the leaky gut/leaky butt/leaky BRAIN. Gillian has a chance at living a life, going to higher education, playing sports requiring hand-eye-EAR coordination. Thank God for the INTERNET.

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376 · October 10, 2011 at 12:35 PM

Gluten was definitely the worst in terms of neurological issues. But casein did not help with the constipation. And since DS refuses to even give it a try as an adult, well, that's that. I think autism has environmental triggers, so while breast milk is dairy containing whey and casein as you note, the problems with dairy don't start until the trigger has been tripped, or the gut has been damaged. I nursed all my kids for 18 months or more. And so that would be another coincident with my son's regressive autism. I stopped nursing about the time he began to show symptoms.

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78422 · October 10, 2011 at 12:18 PM

Do you think casein or gluten was the dominant factor ? There are papers showing that gluten can create cassein allergy. According to the http://www.americanpregnancy.org/firstyearoflife/whatsinbreastmilk.html 40% of human breast milk is casein which is why I find it suspicious that it is dominant factor for majority.

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78422 · October 10, 2011 at 11:52 AM

Thx for sharing. There are number of reports like yours.

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78422 · October 10, 2011 at 9:59 AM

Regarding Wakefield, I don't know if he is guilty or not, and I honestly don't care. I don't base my opinion on single researcher. That said, I think people like Wakefield who had very good carrier before involving itself into autistic scandals or Thomas Levy (involved in vitamin C promotion as universal panacea) who was cardiologist had much more profit to gain if they stayed inside the mainstream course so I doubt they are solely driven by profit although I am also not excluding this possibility. So, I use non-toxic compounds and compare information between different researchers.

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78422 · October 10, 2011 at 9:57 AM

Regarding Wakefield, I don't know if he is guilty or not, and I honestly don't care. I don't base my opinion on single researcher. That said, I think people like Wakefield who had very good carrier before involving itself into autistic scandals or Thomas Levy (involved in vitamin C promotion as universal panacea) who was cardiologist had much more profit to gain if they stayed inside the mainstream course so I doubt they are solely driven by profit.

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3703 · October 10, 2011 at 9:26 AM

I can't tell you how many bloggers I know who have admitted being Aspie to me (like me!!!)... Asperger's is a part of the autism spectrum. The incidence 15 yrs ago was 1:1000 but NOW it is like 1:100-1:120. What do you think it will be in 7-15 yrs from now at the epidemic rate we are going?

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3703 · October 10, 2011 at 9:24 AM

A lot of paleo folks who read a lot use chelators without realizing it. I suspect sometimes as the metals are coming out, actually, people don't feel 'so great' or they think it is some kind of 'reaction'. Actually our bile system, gut and liver take the brunt of detoxification pathways. Sometimes it will just suck for a while but supporting these systems helps whilst taking breaks when necessary. Chelators in the paleo diet: meat meat meat (sulfur based amino acids), herbs, cilantro, lipoic acid as majkinetor discussed, whey, NAC, exercise, sweating, LOSING BODY FAT, etc

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3703 · October 10, 2011 at 9:20 AM

Wakefield is a brave and courageous soul. May he be blessed. The science supports him. Majkinetor -- thank you for your comments. They are ALWAYS SO INSIGHTFUL!!

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78422 · October 10, 2011 at 8:33 AM

I don't know or care who was fraudulent here. I connect dots from various sources that may or may not be related to autism. The good medicine shows its workings in different scenarios. Once you understand the concept you could apply it to different places. For instance, if ketogenic diet is known to help various different mental problems, and is considered safe I wonder why shouldn't I try it ?

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78422 · October 10, 2011 at 8:33 AM

I don't know or care who was fraudulent here. I connect dots from various sources that may or may not be related to autism. The good medicine shows its workings in different scenarios. Once you understand the concept you could apply it to different places. For instance, if ketogenic diet is known to help various mental problems, and is considered safe I wonder why shouldn't I try it ?

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78422 · October 10, 2011 at 8:30 AM

Who cares. The fact is, ALA is not toxic and also made in the body. Vitamin C is not toxic. For breastfed babies, vaccines are useless and may be harmful as they contain suspicious elements and infection doesn't enter the system the usual way. All that is needed is good mom nutrition [not easy thing to do nowdays] during first year, when baby is still developing as it is consisting mostly of nervous system which has well known problems in dealing with hard metals. So, we have here array of non-toxic elements we can improve on babies and even more on kids.

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19220 · October 10, 2011 at 8:11 AM

Andrew Wakefield has a lot to answer for.

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78422 · October 10, 2011 at 7:39 AM

I don't think there is ZERO evidence that mercury causes it.

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203 · October 10, 2011 at 3:40 AM

Great post, likewise I would upvote multiple times. The less stress placed on the system (here with diet) the more manageable symptoms are. Even though I would recommend the GAPS book I cringe when Campbell-McBride talks about "cure".

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7540 · October 10, 2011 at 2:52 AM

thank you so much for that first paragraph, wish I could upvote multiple times. the anti-vax movement is dangerous.

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376 · October 09, 2011 at 12:23 AM

I second the GAPS diet for autism.

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2026 · October 10, 2011 at 2:26 AM

While GAPS diet can be helpful because leaky gut is linked with autism (not necessarily as a cause, but a common comorbid condition), there is ZERO evidence that "Autism is a form of mercury/metal toxicity." "Aspie" is a nickname for asperger's syndrome which is a form of autism. There is no evidence that heavy metal toxicity causes asperger's, adhd or Alzheimer's. There have been zero valid studies which have show that vaccines or the preservatives in them cause autism (the original study which showed a link was retracted by the journal because the author FAKED THE EVIDENCE http://articles.cnn.com/2010-02-02/health/lancet.retraction.autism_1_andrew-wakefield-mmr-vaccine-and-autism-general-medical-council?_s=PM:HEALTH). there is also no evidence that the chelation protocols that people like jenny mccarthy advocate are safe (they are often used without medical supervision) or effective in treating autism. If you are thinking of skipping vaccinating your children, please check out http://jennymccarthybodycount.com/ and read the FAQ.

There IS evidence that people with autism are more likely to get heavy metal poisoning, but that may be due to Pica (craving for and eating of non-food items, such as paint or dirt), which is a common symptom of autism, or due to differing abilities to process the trace amounts we all encounter in the world.

I would advise your friend to think of GAPS, gluten free or paleo as a way of managing the SYMPTOMS her child experiences, not as a "cure." I'm (almost) an occupational therapist and I've worked with lots of kids on the spectrum. I was also in a relationship with a man with asperger's syndrome for 7 years (though he never tried these diet modifications). I've seen that a gluten-free, casien-free diet can be very helpful for some kids. These kids generally have better impulse control and have less need for self-stimulating behaviors or"stims," such as rocking or hand flapping, when they are on the diet. I've heard that it can also help some younger, more severely effected kids to be more interactive, possibly by alleviating stomach discomfort they were previously unable to communicate about.

On a more "tips and tricks" note, I would recommend GENTLY changing the diet of any child. start by introducing some of the new foods (veggies, almond flour chicken nuggets, eggs) alongside familiar ones. It can take up to 20 exposures for a TYPICAL child to enjoy a new food, it may take much longer for a child on the spectrum, particularly if they eat the same things every day and/or have what's known as Neophobia, the fear of new things. If your kid likes purees, puree the carrots, the cabbage, the zucchini, even the beef. Cut it the way they like it. give them something to dip it in (or don't let the food touch, if that's your kid's MO). once your kiddo has begun accepting new foods, start withdrawing the old ones. I'd get the gluten out first, subbing gluten free bread or pasta at first, then moving to "paleo" breads and spaghetti squash. Once the kiddo is off gluten you can start weaning them off of all remaining processed foods (artificial and "natural" colors/flavors, sugar, corn syrup are all things your little one doesn't need) and then look at going full bore paleo.

Autism is the way we explain how this child's brain works differently from the "average" brain. It helps to think of it not as a disease to be cured but as a different lens for looking at the world which makes it hard to see what the rest of us see. I highly reccomend the fiction book "the speed of dark" to help understand this.

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7540 · October 10, 2011 at 2:52 AM

thank you so much for that first paragraph, wish I could upvote multiple times. the anti-vax movement is dangerous.

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78422 · October 10, 2011 at 7:39 AM

I don't think there is ZERO evidence that mercury causes it.

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203 · October 10, 2011 at 3:40 AM

Great post, likewise I would upvote multiple times. The less stress placed on the system (here with diet) the more manageable symptoms are. Even though I would recommend the GAPS book I cringe when Campbell-McBride talks about "cure".

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2026 · October 12, 2011 at 2:56 AM

Majkinetor, I would like to see any evidence you have. I've never seen any peer-reviewed research...

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18635 · October 13, 2011 at 10:29 PM

Last paragraph is good...first one is not.

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3703 · October 10, 2011 at 9:38 AM

Like an autoimmune disorder or any Western civ disease, an immense amount of health optimization can occur with just a few changes! The GAPS is a little overkill in the beginning but once one understands the tenets or core philosophies, it's cake (gluten-free, almond flour cake)!

My sister's 3rd daughter was born with low muscle tone, cranky, bowel issues and stimming (repetitive, annoying behavior). After paleo and a few supplements (liquid pcynogenol, citrus fruit extract, digestive enzymes and probiotics), she was 80% cured. No doctor would diagnose her despite my sister describing her symptoms that are delineated in any psych journal for ASD (austism spectrum disorder). From our experience, 99% of pediatricians are CLUELESS. Please tell your friend] ONE MUST EDUCATE ONESELF. If symptoms don't cure, then consider the high value of seeking a good integrative practitioner/nutritionist who who has had many cases of ASD reversal.

Now Gillian is on mild, gentle, gradual metal chelation and she is about 95-98% cured. She is very social now with great facial expressions and laughing. Before, no eye contact, flat affect, no smiles, again crankiness (and who wouldn't her gut was torqued), anti-social, aggressively mean to 4th child and others (biting), and wouldn't sleep. I was afraid she'd lose her IQ/geniusness/brilliance with being cured but that is intact!

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78422 · October 10, 2011 at 11:52 AM

Thx for sharing. There are number of reports like yours.

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3703 · October 10, 2011 at 1:17 PM

OF COURSE. My sister is relentless (for answers) and truly blessed and gifted. We lost our mom when we were young and she is kinda more nurturing than I and made up for it. Our parents are physicians as well. SIGH. We all had signs/symptoms of gluten intolerance as kids. All 4 of us kids have had an autoimmune disorder (my youngest sis is probably undx'd bipolar).

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25467 · October 14, 2011 at 2:53 AM

Plus 10000000000000 Grace.

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8933 · February 20, 2012 at 4:12 PM

I was afraid of the IQ : I've always been good at maths, and was afraid that'd disappear if I cured my autism.

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3703 · February 21, 2012 at 8:58 AM

Korion. That explains your brilliance!!!! I'd disagree. Recently I was grateful to meet and have dinner with Dave Asprey (and other Paleo luminaries). He cured his Aspie. He's probably MORE brilliant. Haaaaaa. But I wouldn't know. He's definitely very functional. There probably is a 'price'.... Treatment takes diligence. See my link he answers my questions which pertains to this asd/aspie/ADHD thread here: http://www.bulletproofexec.com/podcast-transcript-12-sexification-with-roger-lawson/9/

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3703 · October 10, 2011 at 12:39 PM

Moonablaze,

Thank you for your thoughtful reply and clinical thoughts about working with ASD patients. Personally I find them extremely valuable.

What percentage of kids you worked with had nutritional/gut/metal management? How many failed/succeeded? What success/cures have you observed?

For my niece, I am so grateful for all the resources, links, GFCF paleo-friendly thoughts we've been lucky to secure -- including PALEOHACKERS where I get a ton more RELIABLE MEDICAL info >>>>>>> conventional-medicine.

sigh I agree with actually all of your lifestyle and diet recs but why the VITRIOL? I sense your frustrated and so am i...

We're just hacking here and using the honest science (versus Pharma or bad science) ...I like sharing my experience because I know it is helpful for many 'in the dark'. I'd like to apologize if you think something I said is false or inaccurate...

My sister read half a dozen'autism' themed books.. NONE discussed metals or any attempts at gentle, oral chelation or full attempts at juicing (which is chelation+digestive enzymes+vitamins). She actually read McCarthy's (I just listen to my sis) and distinctly recalled that chelation was not discussed at all. My thoughts on IV chelation are sort of like yours -- I don't like them though I have met numerous people in the Bay Area who had wonderful experiences (20 yrs ago). My practitioner cautions that IV chelation has plastics which some individuals absorb and become toxic on. Additionally they are probably strong and definitely stronger in efficacy/potency than herbals/nutraceuticals like some good oral chelation, like the product we use.

Can you check this one out? What are your clinical thoughts? http://www.extendedhealth.com/products/1-heart-plus-detox-oral-chelation.aspx

It has been used for >> 10+ years in physician and practitioner's offices; developed by PhD nutritionist expert and physicians. We've been on this collectively (my whole family, my sister's whole family incl kids/baby) since June.

Unlike you,I few direct experiences other than n=1, my niece our optimistic 'cure'. Our practitioner OTOH has many and like 'paleo diet' trials, I am very optimistic about the clinical prospective controlled trial by Dr. James Adams PhD who showed that treatment with DMSA oral (a chelator) and glutathione was safe, produced few adverse effects and effective. For those with the most metal/mercury excretion measured in urine, behavioral improvements were the greatest, even to the degree of first-time speech in this subpopulation who were previously without speech. http://www.ncbi.nlm.nih.gov/pubmed?term=adams%20j%2C%20autism%2C%20dmsa

Adams provides good clinical tips here which I have found super helpful: http://www.autism.com/pdf/providers/adams_biomed_summary.pdf

I don't watch cnn (or fox) as most media is bunky IMHO particularly I've found when Big Pharma is involved. Accuse me of being skeptic!!! There are other view points which I have considered. http://www.thehealthyhomeeconomist.com/2011/01/autism-fraud-researcher-a-victim-of-yellow-journalism/

It is interesting to me that you bring up Dr. McBride Campbell who reviews the pertinent and relevant MMR (including Wakefield's) positive associations, as well as discussing the elimination of heavy metals in her protocols. She is very clear how to go about doing 'safe' vaccinations in kids appropriately evaluated to prevent vaccination related adverse events (e.g. autism, immunosuppression, etc). Healthy parents, healthy kids -- single vacc at a time and none at birth. Unhealthy kid, unhealthy parents, NO VACCINATION until healthy and then only single antigen at a time after thorough evaluation...(no vacc at birth as neonate has no/immature immune system and superleaky gut)

Your stance seems odd to me that you support GAPS but don't appear (to me) to support Dr. McBride-Campbell's evidence (vacc, metals, toxins) presented???

Regarding Alzheimer's I've looked at the research in detail. There are no disease modifying treatments what so ever current at this time. What is working in clinical trials are CHELATORS OF IRON. Many of these chelate iron, but upon examination, these chelators ALL ALSO CHELATE MERCURY AND ALUMINUM. Aluminum has long been associated positivly with apoE4 and early onset and random Alzheimer's. http://www.ncbi.nlm.nih.gov/pubmed?term=alzheimer%2C%20iron%20chelation

The association between metals/aluminum and Alzheimer's is becoming stronger and stronger in the literature, though you appear to not have heard about it at all. We all have FAR MORE MERCURY than aluminum due to mercury amalgams, the processing from high-fructose corn syrup, and the heart-healthy-eat-fish-but-not-if-preggers AHA campaigns.

There are even noted paleo high sat fat cardiologists pointing out the link between "Mercury Vaccines and Autism" (scroll down): http://www.donaldmiller.com/

Kind regards, G

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78422 · October 10, 2011 at 12:55 PM

Check out this link: http://curezone.com/forums/fm.asp?i=1529534#i

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3703 · October 10, 2011 at 1:55 PM

Lustig is wrong! HFCS is horrific for MANY REASONS including being a big source of heavy metal...besides giving kids fatty liver. 'Up until recently, HFCS manufacturers used "mercury grade" caustic soda from mercury cell chlor-alkali plants to make their product and as a result consumers were likely exposed to low levels of mercury over time [55]. Using the results of analytical testing conducted on FDA collected samples of commercial HFCS for total mercury and the US per capita consumption of HFCS, Dufault et al. estimated daily mercury intakes from HFCS ranging up to 28 ug [55,56].'

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3703 · October 10, 2011 at 1:51 PM

Why does one think vaccine manufacturers REMOVED MERCURY FROM PEDI VACCINATION SCHEDULES RECENTLY?????!!! And shipped unused to India, Korea (new onset autism is like 1:80~~), and China.

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3703 · October 10, 2011 at 1:55 PM

http://www.behavioralandbrainfunctions.com/content/5/1/44

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2026 · October 12, 2011 at 3:01 AM

The reason I support the gaps diet is that it is a safe-and-sane way to help with the real issue of leaky gut. I'm not totally convinced that "gut and psychology syndrome" is as simple as it's been made out to be, but the diet appears to me to be a good way of healing a damaged gut, even if it's not "leaky" I know a lot of things in my body and mind improved when I got rid of gluten (I came to paleo and then discovered I was celiac), so I don't discount the effect that a crummy digestive system can have on the mind and body.

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3703 · October 12, 2011 at 5:40 AM

Our practitioner like Campbell McBride works on chelation for literally 2-3 yrs. She was surprised in fact Gillian is so highly functioning (neuro-typical now and perhaps even more typicaly than atypical neighbor kids on the 100% S.A.D.). The chelation is very safe, slow and gradual. To me it is like 'juicing' in a pill (3 pills AM, 3 pills PM). GAPS is great but the it's a full time job. Currently I'm in China so I'm limited by even access to wholesome, pesticide-free produce, much less herbs or other common greener.

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2026 · October 12, 2011 at 3:34 AM

About half of the ASD kids I worked with last summer had some form of nutritional management, two had tried OTC chelation, neither had positive results.

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376 · October 10, 2011 at 1:26 PM

You are a great advocate for your niece, Grace. May want to edit to Campbell-McBride for author of GAPS. Re vaccines, I was in the military before DS conception and had been given a load of vaccines all at once then. And of course, did all the recommended for ds, which were lumped together. Not making claims about anything, but when your life is influenced by autism, and you begin to see commonalities with other families, it really makes you wonder. As I said, we families are looking for solutions, mainly. Nothing we can do now to change whatever happened to our kids.

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78422 · October 10, 2011 at 12:54 PM

BTW, there are other options to reduce vaccination damage apart from separating shots - 7 days before and 7 days after vaccine u use several grams of liposhperic vitamin c and liposhperic GSH.

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3703 · October 10, 2011 at 1:49 PM

m-- thanks!!! sounds like a reasonable vacc-adjuvant! We do vit D -- I think that works too but no evidence yet.

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78422 · October 10, 2011 at 12:56 PM

Check out "Vitamin C and Forced Vaccination: Neutralizing Toxicity while Optimizing Response" http://curezone.com/forums/fm.asp?i=1529534#i

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376 · October 10, 2011 at 1:28 PM

Will be interesting to see if these changes in vaccines will help reduce incidence of asd in the future. Certainly I don't want to downplay the importance of finding the cause(s) of asd.

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3703 · October 10, 2011 at 2:10 PM

Moonablaze, The books that my sister read sound a lot to me like the kids you work with -- no clinical improvements. None (that my sister could discern by reading the whole book) had chelation done. Not even old-school IV chelation... (which I am hesitant since there are better tools at our disposal now)

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3703 · October 12, 2011 at 5:48 AM

FYI Campbell-McBride will be at AHS12, my understanding. Maybe she'll have more updates for the refractory cases? Or how to bridge our gap in meeting the challenges? On James Adams advised document there is also family surveys which assessed what they think worked the best for improved autistic symptoms. Gillian and us do everything on that list. No rx except I do fluconazole prn. We do low dose Nature-throid which helped missy'N' my ADHD (mild) 2nd child with focus, clarity and gut. It's only temp until aldehydes and inflammation related to the 13 amalgams she used to have are eliminated.

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2026 · October 12, 2011 at 3:25 AM

Regarding oral chelation, I just did a fresh search for articles, and I found exactly one which supported the use of only one, APPROVED RX drug for chelation as an off-label treatment for autism. Everything else, including a release from the FDA (for whatever that is worth), seemed to point out that chelation drugs can cause dangerous dehydration, kidney damage or heart attacks. "Supplements" are unregulated and truly may contain anything, from none of what is advertised to 1000 times the dosage on the label. I don't want you spending $ on snake oil or accidentally poisoning your niece.

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3703 · October 12, 2011 at 5:36 AM

Yes I'd agree -- have met several indivs (bloggers) who are aspie or adhd despite best paleo efforts, gut management and targeted nutraceuticals (um. like me too) without full improvement of symptoms. Chelation is a process that requires patience and a bunch of good glutathione. Once deep seated candida and clostridial biofilms get entrenched, I do suspect the challenges are not limited. Definitely it appears certain kids (and paleohackers) can overchome these however. Genetics?? I dunno but I wish I had some!! Or to transplant into my kids!!

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3703 · October 08, 2011 at 8:44 AM

Theresa,

You and your friend are in the righto-spot!!

Autism is a form of mercury/metal toxicity. In adults, it's ADHD/Aspie and/or Alzheimers but in neonates and children it exhibits as autism.

Read: http://touroinstitute.com/ifm_proceedings_low.pdf#page=50

Even for chronic diseases, many cancers, autoimmune disorders and heart disease, metals are at the root of the problem.

Mat LaLonde, Robb Wolf, Whole 9 and Julianne's Paleo/Zone blog all advocate wonderful autoimmune protocols which are suitable for reversing autism. CHeck out the GAPS diet by Natasha McBride-Campbell who reversed who son's autism.

Forward this to your friend: http://robbwolf.com/2011/05/23/real-life-testimonial-scarlets-turnaround-autism-paleo/

GAPS works because it seals and heals the gut. IMHO autism is an autoimmune attack on brain structures like the cerebellum and sensory organs. Clostridia and candida yeast/fungal overgrowths in the small intestines and other tissues are de rigeur and should not be underestimated. From what I have observed, a multi-pronged attack in conjunction with safe, gentle metal chelation are the best way to prevent permanent brain damage but disease progression is not only being stopped in older kids but reversed.

G

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376 · October 09, 2011 at 12:23 AM

I second the GAPS diet for autism.

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3703 · October 10, 2011 at 9:26 AM

I can't tell you how many bloggers I know who have admitted being Aspie to me (like me!!!)... Asperger's is a part of the autism spectrum. The incidence 15 yrs ago was 1:1000 but NOW it is like 1:100-1:120. What do you think it will be in 7-15 yrs from now at the epidemic rate we are going?

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78422 · October 10, 2011 at 12:48 PM

It can be anything really, not only vaccines, but IMO its combination of all - lack of nutrients in soil, babies fed adapted food, bad mother/father diet full of carbs and junk food, vaccines on top of that administering aluminium, sugar, animal viruses directly into the vein.....

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376 · October 10, 2011 at 1:48 PM

http://www.gutandpsychologysyndrome.com/wp-content/uploads/2009/11/the-full-gaps-diet.pdf <--For those wanting the diet summary.

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3703 · October 10, 2011 at 3:29 PM

Not everyone apoE4 + metals gets alzheimers (or ASD). This is probably why Al++ is sometimes but not always implicated w/Alz in a couple of trials. My understanding is that metal toxicity sometimes works in combined synergy (so does chelation). NHANES data shows both toxins and metal burdens are increasing. Laks reports that in women 18-49 'inorganic-Hg [mercury] detection rose sharply from 2% in 1999-2000 to 30% in 2005-2006.' If blood > 5 is toxic, then other metals + Hg is supertoxic for susceptible folks. Gillian's hair test showed metals off the chart. 90+ toxicity scale (doctor's data) but it was good indicator because she was GFCF paleo and on gentle chelators and her gut was healing x 1-2 yrs (and 80% symptom-free of autism). Hair analyses can show long-term elimination (NHANES utilized this).

i.e.

Al++ alone = nothing

Hg++ alone = nothing

Al++ + Hg++ = Disease (MASSIVE DISEASE in susceptible)

Fortschr Neurol Psychiatr. 2007 Sep;75(9):528-38. [Mercury and Alzheimer's disease].[Article in German] Mutter J, Naumann J, Schneider R, Walach H.

Abstract Higher mercury concentrations were found in brain regions and blood of some patients with Alzheimer's disease (AD). Low levels of inorganic mercury were able to cause AD- typical nerve cell deteriorations in vitro and in animal experiments. Other metals like zinc, aluminum, copper, cadmium, manganese, iron, and chrome are not able to elicit all of these deteriorations in low levels, yet they aggravate the toxic effects of mercury (Hg). Main human sources for mercury are fish consumption (Methyl-Hg) and dental amalgam (Hg vapour). Regular fish consumption reduces the risk of development of AD. Amalgam consists of approx. 50 % of elementary mercury which is constantly being vaporized and absorbed by the organism. Mercury levels in brain tissues are 2 - 10 fold higher in individuals with dental amalgam. Persons showing a genetically determined subgroup of transportation protein for fats (apolipoprotein E4) have an increased AD risk. Apoliprotein E (APO E) is found in high concentrations in the central nervous system. The increased AD risk through APO E4 might be caused by its reduced ability to bind heavy metals. Latest therapeutic approaches to the treatment of Alzheimer disease embrace pharmaceuticals which remove or bind metals from the brain. Preliminary success has been documented with chelation of synergistic toxic metals (Fe, Al, Zn, Cu) and therefore also Hg. The available data does not answer the question, whether mercury is a relevant risk factor in AD distinctively. In sum, the findings from epidemiological and demographical studies, the frequency of amalgam application in industrialized countries, clinical studies, experimental studies and the dental state of Alzheimer patients in comparison to controls suggest a decisive role for inorganic mercury in the etiology of Alzheimer's disease. Other factors currently discussed as causes (e. g. other metals, inflammations, dietetic factors, vitamin deficiency, oxidative distress, and metabolic impairments) may act as co-factors.

Other resources:

Metal exposure in the physically and mentally challenged children of Punjab, India. [conclusion: DMSA appears safe, effective]

Arsenic and lead induced free radical generation and their reversibility following chelation. [analagous to ox damage w/iron overload/hemachromatosis]

Neuropsychologic and postural sway improvement after Ca(++)-EDTA chelation for mild lead intoxication. Linz DH, et al. J Occup Med. 1992 Jun;34(6):638-41.

Fish is not exactly healthy, esp if you are Asian or higher income female (NHANES 1999-2004)

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3703 · October 11, 2011 at 3:14 AM

One one the best reviews by an expert in India where metal intoxication is rampant from unrestricted environmental pollution and human rights appear to be non-existent. The diagrams and scientific citations are WAY MORE detailed than even the extensive pages provided Dr. Natasha Campbell-McBride: http://www.icmr.nic.in/ijmr/2008/october/1011.pdf

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3703 · October 11, 2011 at 3:11 AM

James Adams listed melatonin as an adjunct above on the resources. ADHD and ASD kids/adults have wacko melatonin according to the studies which can lead to downstream problems. Melatonin supplementation has been shown to be helpful not just in sleep but also ox stress and even chelating. My kids (and I sometimes) take the Trader Joe's 0.5mg chewable mint melatonins... http://www.ncbi.nlm.nih.gov/pubmed?term=melatonin%2C%20attention%20deficit

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3703 · October 11, 2011 at 3:12 AM

http://www.icmr.nic.in/ijmr/2008/october/1011.pdf [the refs are WAY MORE detailed than even the extensive pages provided Dr. Natasha Campbell-McBrides]

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78422 · October 10, 2011 at 7:57 AM

You can try chelation protocol with ALA which is also very good supplement, and see how it works, but it needs to be precisely done or it can cause more damage then not doing it.

See this great response from Andy Cuttler to understand problem better. You could look into his books, and learn more about it. Since ALA is one of the best antioxidants around, it really can't harm if the protocol is done properly.

Intervenous Vitamin C is also good idea. Results should be apparent immediately if it works. If you opt for that, you need to make sure kid doesn't have G6PD deficiency or it could kill him by hemolisis.

Gluten/cassein free diet is what seems to be helpful. Ketogenic diet seem like even better option.

I would also go heavy on hi quality supplements. Autistic children often have digestion problems and deficiencies of several important nutrients.

About vaccines, I know several doctors who have autistic children and think it happened after MMR. My pediatrician didn't complain at all as I opted not to use vaccines with my baby during first year of life as she also have colleagues that are concerned about the potential link. If the link is there, and there IS evidence that it is (especially for male babies) the last thing one would expect is that government and pharma come loud with it, for obvious reasons. Also, arguments about fraud are both ways.

Some people also report that oxygen makes a difference so clean air, open windows during sleep or something along those lines might be helpful (hyperbaric chambers for instance).

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78422 · October 10, 2011 at 9:57 AM

Regarding Wakefield, I don't know if he is guilty or not, and I honestly don't care. I don't base my opinion on single researcher. That said, I think people like Wakefield who had very good carrier before involving itself into autistic scandals or Thomas Levy (involved in vitamin C promotion as universal panacea) who was cardiologist had much more profit to gain if they stayed inside the mainstream course so I doubt they are solely driven by profit.

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78422 · October 10, 2011 at 8:33 AM

I don't know or care who was fraudulent here. I connect dots from various sources that may or may not be related to autism. The good medicine shows its workings in different scenarios. Once you understand the concept you could apply it to different places. For instance, if ketogenic diet is known to help various mental problems, and is considered safe I wonder why shouldn't I try it ?

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19220 · October 10, 2011 at 2:46 PM

@majkinetor - "For breastfed babies, vaccines are useless" Please keep such dangerous nonsense off this site.

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3703 · October 10, 2011 at 9:24 AM

A lot of paleo folks who read a lot use chelators without realizing it. I suspect sometimes as the metals are coming out, actually, people don't feel 'so great' or they think it is some kind of 'reaction'. Actually our bile system, gut and liver take the brunt of detoxification pathways. Sometimes it will just suck for a while but supporting these systems helps whilst taking breaks when necessary. Chelators in the paleo diet: meat meat meat (sulfur based amino acids), herbs, cilantro, lipoic acid as majkinetor discussed, whey, NAC, exercise, sweating, LOSING BODY FAT, etc

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19220 · October 10, 2011 at 8:11 AM

Andrew Wakefield has a lot to answer for.

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3703 · October 10, 2011 at 1:12 PM

Every 'guru' has a kernel of truth *haa* that is why they are gurus. I forgot to mention my niece in with the paleo plan did vitamin D, fish oil and magnesium as well.

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78422 · October 10, 2011 at 9:59 AM

Regarding Wakefield, I don't know if he is guilty or not, and I honestly don't care. I don't base my opinion on single researcher. That said, I think people like Wakefield who had very good carrier before involving itself into autistic scandals or Thomas Levy (involved in vitamin C promotion as universal panacea) who was cardiologist had much more profit to gain if they stayed inside the mainstream course so I doubt they are solely driven by profit although I am also not excluding this possibility. So, I use non-toxic compounds and compare information between different researchers.

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3703 · October 10, 2011 at 3:42 PM

The HPV vaccine is a ludicrous joke. If it is so effective then why not vacc the boys -- the source???

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78422 · October 10, 2011 at 8:33 AM

I don't know or care who was fraudulent here. I connect dots from various sources that may or may not be related to autism. The good medicine shows its workings in different scenarios. Once you understand the concept you could apply it to different places. For instance, if ketogenic diet is known to help various different mental problems, and is considered safe I wonder why shouldn't I try it ?

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19220 · October 10, 2011 at 3:29 PM

Cases of measles increased in the UK due to the MMR scare stories. Legitimate arguments can be made about the effectiveness of individual vaccines, particularly public health interventions. However vaccines can produced protective immunity when given at birth. You can catch Hep B from normal sexual contact with someone, prostitution or drug abuse is not required. The big picture does not show that vaccines are problematic. The internet is full of misinformation on these issues.

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3703 · October 10, 2011 at 1:14 PM

majkinetor... can I just DOWNLOAD UR FR*CKIN HAWWT BRAIN. I've found that I've reviewed a lot of the SAME INFO AS YOU!! Could've saved time...

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3703 · October 10, 2011 at 2:56 PM

Matthew -- I appreciate ur concern. Like maj, I don't really care. The big picture shows that vaccines are problematic. For instance why give a baby Hep B??? No one gets Hep B except from healthcare exposures and PROSTITUTION/IVDRUGABUSE. Is someone so sure their baby will be a doctor or RN that Hep B Vacc is needed AT BIRTH when baby has no immunity (relies on mom's IgM)...???! The at-birth schedule only started recently and this is for PROFIT not preventive care.

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3703 · October 12, 2011 at 5:32 AM

Robb Wolf has also said on his blog (or podcast) that he'd delay and do a diff vacc schedule.

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78422 · October 10, 2011 at 8:30 AM

Who cares. The fact is, ALA is not toxic and also made in the body. Vitamin C is not toxic. For breastfed babies, vaccines are useless and may be harmful as they contain suspicious elements and infection doesn't enter the system the usual way. All that is needed is good mom nutrition [not easy thing to do nowdays] during first year, when baby is still developing as it is consisting mostly of nervous system which has well known problems in dealing with hard metals. So, we have here array of non-toxic elements we can improve on babies and even more on kids.

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19220 · October 10, 2011 at 2:45 PM

@grace - Wakefield is a disgrace to his profession. I am sorry that you have been taken in by all the miss-information he started.

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19220 · October 10, 2011 at 3:52 PM

"If it is so effective then why not vacc the boys" - COST. It is an expensive new type of vaccine to make. Health care agencies rarely have as much money to spend as they would like to.

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376 · October 10, 2011 at 8:01 PM

@Grace re honey, I think the reasoning behind its use is that it is made up of monosaccharides. Not sure if that is true from GAPS perspective, but it is from SCD perspective, which is very similar to GAPS and precedes it. Much more info at the site http://www.breakingtheviciouscycle.info

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78422 · October 10, 2011 at 6:44 PM

@Matthew: *Please keep such dangerous nonsense off this site* - I was talking about newborns. You can give vaccines after first year when the system is prepared. Focus should be nutrition of mother/baby.

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3703 · October 10, 2011 at 3:33 PM

Matthew -- did you get vacc's at birth? I didn't and I'm fine. In fact my WHOLE GENERATION. If it weren't for the media, were those measle cases epidemic? or was it just the media and expected bell-shaped incidence? People get vaccines and they also fail to 'take' esp if immunocompromised...

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78422 · October 10, 2011 at 1:36 PM

... and now we have blush response.... :)

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3703 · October 10, 2011 at 2:53 PM

I've wondered by McBride keeps honey in the protocol -- do you do honey Satya? I kinda suspect it is to stay out of ketosis which is hard on adrenals (which are already stressed out)

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3703 · October 10, 2011 at 9:20 AM

Wakefield is a brave and courageous soul. May he be blessed. The science supports him. Majkinetor -- thank you for your comments. They are ALWAYS SO INSIGHTFUL!!

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19220 · October 10, 2011 at 3:50 PM

They were outbreaks due to non-vaccinated children. Real children ended up in hospital. Just because people "were fine" in the past does that mean we should not try to improve on the future? No vaccine works in everyone, that is why we rely on herd immunity. I believe the main drive behind the Hep B vaccine is that it has been shown to lower rates of liver cancer many years later, Hep B is a major cause of liver cancer.

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3703 · October 12, 2011 at 5:24 AM

Satya, Several people have noticed that sugar (table) is fine w/gut issues and I tried it. My gut was the same and in fact perhaps a little better (took digestive enzymes). Rice sometimes will give me bloat however (even w/enzymes). Honey makes sense.

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376 · October 10, 2011 at 2:47 PM

Regarding a ketogenic diet, I agree it is helpful, but it can also kill off gut flora if taken to the extreme of all meat: http://www.jstor.org/pss/30081508 so might be best to combine it with fermented plant and/or animal foods.

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7540 · October 10, 2011 at 5:35 PM

People were not "fine" in the past. There was a time when, if you had, say, 5 kids, it was reasonable to expect that at least one would die in childhood from one of the diseases that we routinely vaccinate against. Diseases like polio can have devastating sequelae. BTW those immunocompromised people you're using to support your "argument"- they're the ones who are most affected by your selfish decision not to vaccinate, since they rely on herd immunity. Your kid may recover from measles, but a leukemia patient or someone with a primary immune deficiency disease might not be so lucky.

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3703 · October 12, 2011 at 5:31 AM

Matthew -- A lot of vaccines are bogus and you can't believe every vaccine study that Big Pharma publishes. Here's what Chris Kresser thinks of flu vaccines: http://twitter.com/chriskresser/statuses/7815295003529217

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32518 · October 10, 2011 at 3:44 PM

Some really helpful info at the Vitamin D Council. Do a a search for "Autism".

A couple of case studies in the newsletter archives are enlightening.

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376 · October 10, 2011 at 11:58 AM

I have a 23 yo son who was diagnosed at age 3 with PDD, nos. I watched him achieve all milestones at age appropriate levels until about 18 months (and yes, this did coincide with MMR, fwiw). He went from a very big baby to an emaciated young boy with chronic constipation and many stimming and behavioral problems. He had stopped talking at 18 months but fortunately he began again at age 7. His prognosis would have been very poor had he not begun talking by age 9, according to his doctor.

I learned about dietary intervention with a gluten free casein free diet when he was 12 because parents of autistic children had implemented such a plan successfully via the internet. These parents were perceived as crackpots by the medical community at that time (circa 1998). Within 3 days of eliminating gluten and casein cold turkey style, the self destructive behavior of grinding his fist into his chin ceased in my son. He finally began to grow again, although I believe his growth potential was never achieved due to digestive problems. We learned later about the Specific Carbohydrate Diet and tried to follow that pretty strictly. Casein was out and DS has refused to consume it since we initially eliminated it from his diet, so we did not make the yogurt Gottschall suggested. We learned about fermentation of plant foods through WAPF originally and have been making wild ferments for about 7 years now, which has greatly improved his digestive and behavioral health further. Learned about GAPS through them.

I think what parents of autistic children are looking for is improving the lives of their children to whatever degree possible. What causes this spectrum of disorders is important too. (And let's face it, all parents will vaccinate, feed or otherwise care for their children based on their own values, which may go far beyond considerations of autism.) But most important is finding a solution or even a treatment to the very real, distressing gut and psychological problems these children face. Thus, as a resource, I would have to say that in my years of experience educating myself about this situation from many angles, the GAPS book and website would by far be the best choices for someone who wants one basic concept of the best approach to intervening on behalf of their autistic child. Gluten free is not enough for many. Casein also produces opioids that can be problematic for at least a segment of the autistic population. And so without a comprehensive approach, you may not achieve the best results possible in the least amount of time. Perhaps the author does not get everything absolutely correct, but who ever does? In terms of a protocol that can help make a difference, this is it.

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3703 · October 10, 2011 at 1:02 PM

Don't be hard on yourself!!!! OMG you have had unprecendented improvements for your son it appears to me!!! (I tell my sister your pain will be somone's gain (education-wise; she home-schools). It is unfortunate your son was born before the world-wide-web connected like minds. Do you think that kids are more and more sickly as you mentioned because of the epigenetic links to increasing # sickly moms?? My sis has had yeast for yrs; finally a DNA stool analysis (eg metametrix,genova) was 2++ candida DNA. I also have candida DNA ++++ but (-)culture coz pathogenic yeast often won't culture.

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376 · October 10, 2011 at 12:35 PM

Gluten was definitely the worst in terms of neurological issues. But casein did not help with the constipation. And since DS refuses to even give it a try as an adult, well, that's that. I think autism has environmental triggers, so while breast milk is dairy containing whey and casein as you note, the problems with dairy don't start until the trigger has been tripped, or the gut has been damaged. I nursed all my kids for 18 months or more. And so that would be another coincident with my son's regressive autism. I stopped nursing about the time he began to show symptoms.

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3703 · October 10, 2011 at 1:04 PM

All these 'neolithic' comprehensive tools are now available (not 20 yrs ago, or even 5) but above all I think the community is most important by sharing our stories, even the 'failures' because some factor was overlooked or missed.

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3703 · October 10, 2011 at 12:41 PM

I agree. GFCF (esp high refined tapicoa, rice, grain whatever) doesn't work. They eat GF donuts all day. BIG FAIL for these kids whose mom's are perpetuating the leaky gut/leaky butt/leaky BRAIN. Gillian has a chance at living a life, going to higher education, playing sports requiring hand-eye-EAR coordination. Thank God for the INTERNET.

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376 · October 10, 2011 at 12:58 PM

Grace, it's really tough because it can be such a major dietary transition for a family. But if you continue the junk with a leaky gut, as you say, things will not get as good as they could going to whole GAPS 9 yards. In my case, I found out I am gluten intolerant too (surprise surprise), so am glad I went along on this journey. But for asd kids, time can be of essence in terms of making the most difference possible. Best to really attack the situation head on to the extent possible as soon as possible. Paleo foods are where it's at.

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3703 · October 10, 2011 at 1:36 PM

My sis honestly does recall if Gillian had the MMR but she doesn't care because Gillian from Day 1 was not only a 'different' baby but had the signs of other autistic/spectrum babies.

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3703 · October 10, 2011 at 12:54 PM

Congratulations with your 23 yo son!!! May I request and ask how functional are his abilities? What behavioral/hearing/ visual/ neurological rehab or re-training worked? The ferments sound delicious! What wild ferments do you make and any book/website links would you recommend? I haven't reviewed all the recipes that go along with GAPS yet like kermiss and others. I struggle with just making bone broths every day or every other day!

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3703 · October 10, 2011 at 1:33 PM

YOU MUST HAVE ETERNAL PATIENCE!! My sister home-schools to control the environment and she'd agree low sensory stimuli are best (teacher has ADD). Her husband on the other hand (former Marine) gets his *ss handed daily by the high school kids he teaches HAAA! IMHO there are indeed multiple causes. Like you I was also shocked by the microbial aspects!!! I used McBride's book as the foundation for a talk on gut microbiota at AHS (my blog has links, comments). Can't tell you how many grrrls I know with YEAST YEAST YEAST and SINUS YEAST. It does explain their kids from this viewpoint.

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78422 · October 10, 2011 at 12:18 PM

Do you think casein or gluten was the dominant factor ? There are papers showing that gluten can create cassein allergy. According to the http://www.americanpregnancy.org/firstyearoflife/whatsinbreastmilk.html 40% of human breast milk is casein which is why I find it suspicious that it is dominant factor for majority.

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376 · October 10, 2011 at 12:45 PM

Campbell-McBride suggests that if mother's microbial health compromised, infant may suffer damage. Infant depends on mother's microbes at birth. If not healthy, could set stage for gut problems. I did have a yeast infection when pregnant with DS, fwiw. I actually have learned so much from GAPS in recent months. I can see possibilities I had not considered before. Probably would have helped DS better had I the info then.

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3703 · October 10, 2011 at 1:39 PM

Austism and ADHD start often w/the mom -- that is McBride drove home.

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3703 · October 10, 2011 at 3:35 PM

Agree -- Austism and ADHD start often w/the mom -- that is what McBride drove home for me too (hard to take)

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3703 · October 10, 2011 at 1:34 PM

I'll ck out Body Ecology!! Found a bunch of fermentation blogs but haven't had time... (looks like a full time job honestly like bone brothing)

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376 · October 10, 2011 at 1:13 PM

I homeschooled too. Both kids. Low key environment is really good for asd, imo. I am no expert on autism, but the increase in cases is very alarming, and I simply cannot believe it is better diagnosis. I went to school, there were not cases of autism like now. So many possibilities to speculate about. Could be multiple causes. But the microbial angle is very very compelling to my personal experience.

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376 · October 10, 2011 at 1:05 PM

Grace, I will end up writing too much here, lol, but certainly we can talk a bit. He still has some healing to do, but I see improvement even today. He is at home, completed trigonometry with me. If I would have started sooner, I am sure things would have been better. But we do the best we can with info at hand, right? I make kraut, kimchi, pickled veggies of many varieties. Just got Body Ecology culture starter so that I can use less salt than required with wild ferments - well, maybe not required, but I hate throwing out food that gets mold as not enough salt/acid to keep them away.

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1471 · October 12, 2011 at 10:29 PM

OK, So I have never picked a bounty winner before. Problem is, if there isnt a cure for autism yet, how in the world do i choose a winner? :)

Theresa

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1471 · October 13, 2011 at 2:05 AM

best answer, I think I click on the check mark as the accepted answer and the points go to that person. Its pretty cool! I offered 100 points and paleo hacks puts in 50 points.

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3703 · October 13, 2011 at 12:20 AM

What's a bounty winner? Wasn't the question RE: fave source? WHo gets the points, person asking? or answering? both? thanks! G

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3703 · October 13, 2011 at 11:49 PM

VERY COOL!!!!!!

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2427 · October 10, 2011 at 9:34 PM

Try this website: wrongplanet.net

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