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Mystery Illness

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Updated October 22, 2014 at 4:16 AM
Created May 11, 2014 at 5:46 PM

Last October i had really bad digestive issues. Bloating/constipation and gas. I tried every single over the counter remedy, and nothing worked. Fast forward to December, and i found out i was pregnant. I started to feel a bit spaced out, it felt like i was extremely high. It would come and go, along with some headaches every couple of days, which with a little tylenol would be gone.This went away after a few weeks, and then a week later i miscarried. I did not feel spaced out, or have the headaches again until about 3 week later, and now the spaced out feeling is 24/7 from when i wake up to when i go to bed for the past 4 months. I am certain that these issues have some link to digestive problems, because the spaced out feeling gets worse when i eat sugar/carbs. I have been to a gastro who did some stool samples, and the only thing that came back was yeast overgrowth in stool. He gave me nystatin for 10 days, and it didn't do anything except make me a little more regular with my bowel movements. He wanted to do a colonoscopy, but i have put that on hold because i don't want to go under anesthesia with my head feeling this way. Other symptoms i am experiencing: Extreme light sensitivity Heartburn only after "bad" foodsBloating Constipation Stomach pressure Itchy ears/nose Post nasal drip Vaginal yeast infections urgency/frequency urination (microscopic blood found in urine) Undigested food in stools White tissue bits in urine and stool Yellow nut looking things in stool sometimes without consuming nuts I have had a ct scan of the head which was normal, and have been tested for celiac twice. I also read about yeast overgrowth issues seems my gastro found overgrowth in my stool. I saw a doctor who deals with yeast overgrowth who has given me nystatin and diflucan to try. I am giving it a go, but i am a little skeptical seems there is so much controversy over whether yeast overgrowth really exists. I am losing hope and i don't know where to turn next. I feel spaced out all the time, and it is really ruining my life. Anyone have a similar experience?

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8 Answers

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15 · May 12, 2014 at 3:15 AM

With my food sensitivities, I get mostly neurological symptoms, including brain fog.

With my recent low carb problem, I get unbearable fatigue, what feels like dehydration, and electrolyte symptoms like pounding heartbeats.

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0 · May 12, 2014 at 2:36 AM

Do you have brain fog or light sensitivity?

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15 · May 12, 2014 at 2:24 AM

I definitely do NOT know a lot about this. You just caught me on a lucky day, because I am bringing together months of research around these issues and documenting for myself which tests I want to get.

I have long standing issues with food intolerances. I went to a celiac specialist in my area, and my conclusion is that science has marched far far ahead of standard of care in medicine. If you look at the Cyrex tests alone, they are on the leading edge of science and measure very relevant things for anyone who is wheat intolerant but does not have celiac. My gastro could not be bothered with any possible condition other than the disease named "celiac". So I'm left with no choice but to work outside of medicine in the functional medicine community.

I went low carb in November and crashed really badly on this diet. I'm hoping the gut scan might pick up some things that give me some clues to the fatigue I experience on low carb.

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0 · May 12, 2014 at 2:11 AM

Did you also suffer the same issues?

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0 · May 12, 2014 at 2:01 AM

Thank you Pone. Do you have an email i can reach you at if you don't mind, or another way of messaging? You seem to know a lot about this

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15 · May 12, 2014 at 2:01 AM

Can someone recommend some functional medicine doctors who are expert at interpreting the Metametrix GI Effects tests?

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15 · May 12, 2014 at 1:50 AM

Sorry for your miscarriage.

Did you start to feel this way after you had an antibiotic? Candida is often opportunistic and comes in after antibiotics or an infection.

I would look at this to answer two different questions:

1) Do you have an IgM delayed food sensitivity, one example of which is celiac. Find a functional medicine doctor familiar with the Cyrex lab tests for these. One I know about is thedr.com

http://www.cyrexlabs.com/CyrexTestsArrays/tabid/136/Default.aspx

Immunolabs offers a 154 food test for IgM sensitivities:

http://www.immunolabs.com/patients/products/blood-print

The Bloodprint 154 test is the most comprehensive one. 2) Do you have pathogens in your bowel? Have someone do a comprehensive stool analysis test using DNA analysis, not the old fashioned methods used by gastroenterologists. MetaMatrix is the leader in that area with their GI Effects test:

http://www.metametrix.com/test-menu/profiles/gastrointestinal-function/dna-stool-analysis-gi-effects

Find a functional medicine doctor who is good at reading that test, which will probably confirm your earlier exam, but may find other organisms.

E24390f6d880f9144cdf7ab13220a84a
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15 · May 12, 2014 at 1:44 AM

Did you start to feel this way after you had an antibiotic? Candida is often opportunistic and comes in after antibiotics or an infection. I would look at this to answer two different questions: 1) Do you have an IgM delayed food sensitivity, one example of which is celiac. Find a functional medicine doctor familiar with the Cyrex lab tests for these. One I know about is thedr.com http://www.cyrexlabs.com/CyrexTestsArrays/tabid/136/Default.aspx Immunolabs offers a 154 food test for IgM sensitivities: http://www.immunolabs.com/patients/products/blood-print The Bloodprint 154 test is the most comprehensive one. 2) Do you have pathogens in your bowel? Have someone do a comprehensive stool analysis test using DNA analysis, not the old fashioned methods used by gastroenterologists. MetaMatrix is the leader in that area with their GI Effects test:</span> http://www.metametrix.com/test-menu/profiles/gastrointestinal-function/dna-stool-analysis-gi-effects Find a functional medicine doctor who is good at reading that test, which will probably confirm your earlier exam, but may find other organisms.

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