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Specific recommendations for Endometriosis?

by (75)
Updated about 21 hours ago
Created April 25, 2011 at 5:45 PM

I am hoping some of the women on here that have dealt with endometriosis or heavy periods by going paleo. Could give some specific recommendations about what they think are the most important aspects of a paleo diet for healing these issues.

I am asking a for a friend who has endometriosis and is going to try paleo to help with her symptoms. She also has tested for thyroid in the low to normal rang but with no symptoms. She is otherwise healthy. Doesn't need to lose any weight. Has an active job and bikes 14 miles 4 days a week commuting to work. She never has issues with her digestion other then some diarrhea right before and during the first day or two of her period.

She eats a fairly healthy diet close to WPF with few grains, plenty of saturated fat, grass fed meat, fermented grass fed dairy, fermented vegis, and almost no legumes or bad oils. Her main problem is her sweet tooth she does eat a fair amount of sugar. In the form of fruit, candy, and some baked goods.

My questions are:

  1. How low carb would you recommend? does she need to be in ketosis?

  2. Does she need to avoid all dairy to be low carb? She makes her own 24 hour fermented goat milk greek yogurt with milk from her own goats and doesn't want to stop eating it. She also eats butter and cream.

  3. Do you have an opinion on the most important foods to avoid? I was thinking gluten, sugar, high omega-6 oils.

  4. She has been using some gentle homeopathics to change some of her hormone balances with some success. Does she need to stop and just let the diet work for awhile?

  5. cod liver oil, primrose oil should she continue to take these?

Her Dr. has recommended surgery when she can afford it to take out the endometrail tissue. But she wants to try to put it in as much of remission as she can before and after that. Any other recommendations would be very much appreciated. Prove to her that the internet does have some rational, knowledgeable, and helpful people on it. Thanks

D5d982a898721d3392c85f951d0bf0aa
2417 · January 16, 2012 at 6:34 AM

I'm as crunchy as the next left coast nouveau hippie, but sometimes all the nutritional management in the world won't fix a problem. And keep in mind the most popular treatment for severe endo is medical menopause. THAT is invasive. I just don't want women feeling guilty about however they choose to address their chronic pain.

D5d982a898721d3392c85f951d0bf0aa
2417 · January 16, 2012 at 6:29 AM

I know this is an old post, but I have to say - Paul, bless your heart for a thorough answer, but you clearly don't have this disease. I'm one of the more severe cases, and while I think the best thing I did for my endo was to give up gluten (aka reduce inflammation), surgery gave me my life back. 3 years ago I had one good week a month. One! I couldn't squat, crouch, tie my shoes without pain. I couldn't go to the bathroom without pain. No sex without pain. Cutting out some rogue tissue is a lot less invasive to my life than being disabled in my 20s.

E18e55fca0dc5c2782f5f74efc1d8f40
0 · October 17, 2011 at 5:16 PM

I agree with your statements about the fish oil- I do quite well with my omega's and haven't had issues- I probably get what I need though.. nothing more and nothing less. I have noticed that around my period that fish is not what my body wants ( at least not salmon, tuna, maybe some cod I usually hate the taste a week before- during or right after my ovulation- it is odd) I take this as a sign my body does not want it and I stick with red meats, maybe some shrimp a serving of cod during my cycle and a bit of chicken. and then after I return to eating my norms

E18e55fca0dc5c2782f5f74efc1d8f40
0 · October 17, 2011 at 5:10 PM

Very good post! My diet is similar- I do not supplement but have bought a good multi to try- I try to get the most out of my food. I noticed that steaming veggies and using nothing but water is a good way to start off a change of diet to help with endo. I also eat just a bit more dairy around the time of my cycle- really helps! ( for me at least- organic of course) I also do a lot of intermittent fasting- I feel tens time better- ( at least 2-3 times for me I do morning fasts with a nice salad later in the day) I agree with avoiding surgery- try natural ways first

4354745cc31c9e0c58f1a396bea962f1
75 · April 25, 2011 at 7:55 PM

I did mean homeopathy both of us are surprised it did anything. She used them for a few months and noticed a positive change then went off and got worse again. She has been taking the CLO/primrose oil under recommendation from her natropath Dr. and it is based on her cycle. If you want more info on that I could ask her for more specifics. As for the vitamin A I am curios about your concern because I have read other places that supplementing it can be a good thing for endo. I believe the WPF website has an article specifically on that subject. What do you see wrong with higher vitamin A?

4354745cc31c9e0c58f1a396bea962f1
75 · April 25, 2011 at 7:40 PM

Thanks for your answer. So she already strongly avoids soy and high omega-6 oils and has for years. she also eats internal organs and is preferential to red meats. For her thyroid she has been eating seaweed almost daily. Do you think thats enough? is there a cheap way for her to get her thyroid levels tested?

C61399790c6531a0af344ab0c40048f1
2245 · April 25, 2011 at 5:56 PM

I hope you get some good answers. I ended up having the surgery for very severe endo - they took the lot out :( I'd love to know what my daughter should do to avoid getting it in the first place. Presumably keeping oestrogen as low as possible will help the most for which I believe white mushrooms are very good - and obviously avoiding anything with soy in it.

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4 Answers

9e20abb05f3f6e3cc4bb107f8980aecd
7
5929 · April 25, 2011 at 6:38 PM

This is just my opinion, not tested science, but here goes:

Keys: Eliminate grains (except rice) and legumes, but especially soy which is rich in phytoestrogens. Soy is probably the single leading cause of endometriosis. Minimize omega-6 (prefer red meats and seafood to pork or chicken; butter and coconut milk/oil and palm oil to olive oil; do not use canola oil or other vegetable oils) and get moderate but not large amounts of omega-3 from 1 lb/week salmon or sardines or other oily marine fish. Minimal fructose; use glucose sweeteners like rice syrup instead. Optimize vitamin D, probably 35-40 ng/dl 25OHD, preferably from sunshine. Supplement vitamin K2 (important, although her fermented dairy has some). Supplement antioxidant minerals (selenium, copper if she doesn't eat beef liver, zinc if she doesn't take a multivitamin) and vitamin C. Supplement magnesium. Supplement N-acetylcysteine. Tend to the thyroid: supplement iodine at a low level, say 500 mcg/day, and try to achieve a TSH around 1.0 or less. Monitor this regularly.

  1. No, ketosis is not necessary. There's considerable leeway in carb consumption to fit her personal taste, but if she wants a number I would recommend around 400 calories per day from starches (rice, potatoes, sweet potatoes, taro, plantains, etc) plus as many vegetables as she cares to eat, and a bit of fruit or berries.

  2. No. Goat milk is excellent. Cream she may wish to avoid carrageenan-containing brands.

  3. See above.

  4. I assume you mean herbal medicines rather than true homeopathic medicines. Personally I would avoid herbals, they can easily cause trouble.

  5. No. Way too much vitamin A and omega-3 fats in cod liver oil. Excess vitamin A promotes endometriosis and so do oxidized omega-3s. Instead, eat egg yolks, liver, and colorful vegetables (plus perhaps a multi or cod liver oil if you choose up to 5,000 IU/day at most) for A, and salmon or sardines for omega-3s. Way too much omega-6 in primrose oil. Stop both of those.

Another step that may be helpful is circadian rhythm therapy: intermittent fasting, sleep in total darkness, physical activity during the day, sun exposure during the day.

Finally, unless she is in great pain I would avoid the surgery. It is much better to clear it naturally.

4354745cc31c9e0c58f1a396bea962f1
75 · April 25, 2011 at 7:55 PM

I did mean homeopathy both of us are surprised it did anything. She used them for a few months and noticed a positive change then went off and got worse again. She has been taking the CLO/primrose oil under recommendation from her natropath Dr. and it is based on her cycle. If you want more info on that I could ask her for more specifics. As for the vitamin A I am curios about your concern because I have read other places that supplementing it can be a good thing for endo. I believe the WPF website has an article specifically on that subject. What do you see wrong with higher vitamin A?

4354745cc31c9e0c58f1a396bea962f1
75 · April 25, 2011 at 7:40 PM

Thanks for your answer. So she already strongly avoids soy and high omega-6 oils and has for years. she also eats internal organs and is preferential to red meats. For her thyroid she has been eating seaweed almost daily. Do you think thats enough? is there a cheap way for her to get her thyroid levels tested?

E18e55fca0dc5c2782f5f74efc1d8f40
0 · October 17, 2011 at 5:10 PM

Very good post! My diet is similar- I do not supplement but have bought a good multi to try- I try to get the most out of my food. I noticed that steaming veggies and using nothing but water is a good way to start off a change of diet to help with endo. I also eat just a bit more dairy around the time of my cycle- really helps! ( for me at least- organic of course) I also do a lot of intermittent fasting- I feel tens time better- ( at least 2-3 times for me I do morning fasts with a nice salad later in the day) I agree with avoiding surgery- try natural ways first

D5d982a898721d3392c85f951d0bf0aa
2417 · January 16, 2012 at 6:29 AM

I know this is an old post, but I have to say - Paul, bless your heart for a thorough answer, but you clearly don't have this disease. I'm one of the more severe cases, and while I think the best thing I did for my endo was to give up gluten (aka reduce inflammation), surgery gave me my life back. 3 years ago I had one good week a month. One! I couldn't squat, crouch, tie my shoes without pain. I couldn't go to the bathroom without pain. No sex without pain. Cutting out some rogue tissue is a lot less invasive to my life than being disabled in my 20s.

D5d982a898721d3392c85f951d0bf0aa
2417 · January 16, 2012 at 6:34 AM

I'm as crunchy as the next left coast nouveau hippie, but sometimes all the nutritional management in the world won't fix a problem. And keep in mind the most popular treatment for severe endo is medical menopause. THAT is invasive. I just don't want women feeling guilty about however they choose to address their chronic pain.

0247cb88705b958560b3f6effe9696e3
0
0 · August 17, 2012 at 1:59 PM

Endometriosis is a challenging disease to manage. I follow paleo principles, consult with a holistic MD who prescribes bio-compatible progesterone, support my fatigued adrenals with DHEA and Pregnenolone, Licorice and Liver Support. Supplement with magnesium, Vit D, Chaste Tree. The key is to support your entire endocrine system.

However, having said that, it is definitely a balancing act that seems to sway on a dime. I have accepted that nothing short of major medical intervention is going to eradicate the pain and even then, there are no guarantees. Inflammation is such a big problem to me that exascerbates and exhausts all other systems. I'm looking at getting a laproscopy soon to clear away adhesions. Pain killers and NSAIDs are a necessity on some days in order to function and be cheerful for the family.

Consider medical marijuana if it is legal in your state. Unfortunatley where I live it is not an option, but one that I would definitely explore if I relocate to a state that legalizes it. After having this for 20 years and gone through many emotional cycles and ups and downs. My main focus apart from supporting my body as holistically as possible, is to manage the pain. For that I have to say, it has required that I have to give up some of my notions and be open minded about allopathic methods. I'd rather have a life that I have energy to particapte rather than a debilitated one with no energy.

Good luck to all.

2c6d64f651dc37a84d55775b1d58a734
0
0 · November 22, 2011 at 9:08 AM

can one with endomethroisis use palm oil.

17c4ac2c3f75c9e37d196ea878ea94b5
0
130 · May 10, 2011 at 9:15 AM

Hi! A year ago I began eating low carb, high fat, ketogenic. My first period after I began had the normal endometriosis pains. However, the 2nd-6th month were amazing! I made the big mistake of eating standard American food over Christmas and my birthday in January. I started up the diet in February. My cramps have been really bad since January again. :(

I read an article yesterday on pubmed that said that inflammation decreased with calorie restriction. There were also 2 articles about increasing fish consumption and reducing drastically my Omega 6s. So I have started fasting every other day and drastically decreasing my seeds/nuts. :0( Fingers crossed

Good luck to your friend! Please let us know if anything works well!! I find that this is a topic my doctor just doesn't have any advice on. :0(

Oh, one side note: has anyone tried the progesterone creams? I have read that while going very low carb (reducing insulin drastically), progesterone can bind antagonistically to estrogen receptors and thus reduce the estrogen load seen in endo. Any luck with that?

Also, one small correction about the fish oils. Someone said to avoid them because of oxidation. That is not entirely true. I live in the land that is probably best known for cod liver oil, Norway. There is a brand available here that does NOT have oxidized Omega 3. It is a very expensive product that has no flavor (pure fish oil should NOT taste like fish. it is oxidized if it has any fishy flavor.) A Norwegian doctor who has a child with autism needed a fish oil that her son could handle. She went around to all the cod liver companies in Norway and challenged them to make a non-oxidized oil that wouldnt need unnatural Vitamin As/Ds added to it. This is the result. It has to be refrigerated, They wont even mail it if it takes more than a week to arrive. It only lasts about 4 weeks in the fridge. When something will go bad this easily, you know it is pure. So, yeah, excellent source of Omega 3. Much more readily available for your body than the oxidized kinds... I have a subscription on it to make it cheaper.

https://omega-cure.com/

E18e55fca0dc5c2782f5f74efc1d8f40
0 · October 17, 2011 at 5:16 PM

I agree with your statements about the fish oil- I do quite well with my omega's and haven't had issues- I probably get what I need though.. nothing more and nothing less. I have noticed that around my period that fish is not what my body wants ( at least not salmon, tuna, maybe some cod I usually hate the taste a week before- during or right after my ovulation- it is odd) I take this as a sign my body does not want it and I stick with red meats, maybe some shrimp a serving of cod during my cycle and a bit of chicken. and then after I return to eating my norms

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