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Impacts of a paleo-type diet on cystic fibrosis

by (8868)
Updated about 3 hours ago
Created April 08, 2011 at 6:53 PM

How does a paleo-type diet affect health outcomes on those with cystic fibrosis? Any heterozygotes (carriers) with anything to share?

I am a carrier. I respond well to a nearly zero carb (and fiber), high fat diet. Any significant quantities of starch cause indigestion. Most sources of fiber as well, with the exception of those that are unaccompanied by starch, such as lettuce.

This question is an attempt to get some data on a subject for which I can find no discussion anywhere. :)

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3703 · February 10, 2012 at 11:52 AM

That's an amazing story

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8868 · February 09, 2012 at 11:40 PM

Oh and in response to the glucose control issues--no issues since going paleo.

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8868 · February 09, 2012 at 11:38 PM

Symptoms are many, varied, and hard to untangle from my other chromosome 6 aberration (celiac gene). That said, I get very mucousy when I eat the wrong foods. Get dandruff. Red skin bumps. Don't know the scientific term, but "inability to take a proper crap" is the thing that drove me to paleo. You can read all about it at baconat3am.wordpress.com.

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16131 · February 08, 2012 at 7:53 PM

I wonder what are your symptoms? Do you have glucose control problems? I am reading that there are many digestive issues with CF - do you take enzymes? I hope to bump this to get more attention on this subject.

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2 Answers

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10044 · February 10, 2012 at 4:31 AM

This link may be of interest to you:

http://nutrilithic.com/about-me/

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3703 · February 10, 2012 at 11:52 AM

That's an amazing story

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448 · March 17, 2012 at 2:00 PM

Heterozygote carrier. I can only speculate about its effects. Reading up on CF, excess production of mucus appears to be a major effect. When I was little, I had frequent ear infections. I assume that excess production of mucus block drainage of the ear and caused infection. In adulthood, pre-paleo I frequently was constipated. I assume mucus production played a role.

Post-paleo, I haven't had problems with ear infections. Of course, if I eat meat only, I'll feel constipated.

The CF gene affects chloride transport. Personally, I'm a little obsessed with getting salt intake right. Last night, I eat a grapefruit and three plums before going out. In my car, I realized that I felt salt deficient and looked for the first restaurant to stop and get some salt. I had been keeping a container of salt in the car for situations such as this, but accidentally bought it into the house. Fruit is high in potassium and salt is needed to balance it out. Usually, I am fine with salt balance because I add it in when I cook. But sometimes I just forget and need it. Before I figured out I needed salt, I felt thirsty and just drank water, pissed it out and still felt thirsty.

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