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Colitis and other autoimmune problems

by (80)
Updated about 4 hours ago
Created April 13, 2012 at 5:44 PM

Just got diagnosed with ulcerative colitis. I already have celiac, liver and heart problems, hypothyroidism, and now this. I feel like I am making my best efforts to be strict autoimmune paleo, and I just keep getting worse! I am so open to any ideas or suggestions! Help!

089dd41b18fbb95ebb5347cded708d98
5650 · October 01, 2012 at 12:28 AM

hi dani! i am wondering how long it took for you to see good results with scd/paleo? that's what i am doing- following both at the same time, and i am feeling better than i was, but still can't leave the house, work, or basically do anything. still have pain, urgency, bleeding, and lots of bms.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 20, 2012 at 1:30 AM

thanks Dani! I will look into accupuncture. This is very helpful!

F5a0ddffcf9ef5beca864050f090a790
15400 · April 18, 2012 at 1:13 PM

Oh-oh. Ulcerative colitis is not fun. I have gastric erosion, but I stopped taking medicine (the doctor did not approve it, but I am feeling better without it).My herbal medicine did not come in yet, but all of the sudden I am feeling better. Not even sure why. I have been eating veggies and virgin coconut oil, nothing else, but feeling okay. Good luck to you and let me know what your naturopath is going to say.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 18, 2012 at 1:07 PM

Diagnosed with ulcerative colitis after testing were done. I had a bad feeling..... On prednisone and suppositories. Sigh. Seeing a new naturopath today, so hopefully better answers? How are you feeling?

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 7:19 PM

And to avoid any misunderstandings, I think 80ng/ml is in unsafe territory. Vitamin D did nothing for me, I developed UC only after having supplemented with it for a year (>50ng/ml). Retinol is essential to protect from D toxicity. http://blog.vitamindcouncil.org/2012/01/25/new-study-vitamin-d-levels-of-the-maasai-and-hadzabe-of-africa/

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 6:54 PM

Btw, if you're hungry you probably need to eat more meat in general and more fat in particular.

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 6:50 PM

http://bit.ly/HIwXeD

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:43 PM

I have wanted.... Sorry I phone!

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:40 PM

So funny! All u have wanted in the last few days is gluten free granola.it may be bad but I have given in because I am so hungry! I hate not being able to eat fruits and vegetables during this flare! Your point is so true about the celiacs. Let's keep in touch! I will let you know how my appt goes on Wednesday with new naturopath!

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:37 PM

Great! Thanks guys, I am doing a gaps type protocol/ scd but I am so hungry ( I teach fitness and yoga classes so I am pretty active) I love healthy eating, so it kills me to not have Any fruits or veggies.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:35 PM

Ewwwww! But fascinating! Thanks for the info! Does the worm therapy work if the issue is not bacteria but actual autoimmune issues? Have you done this yourself?

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 5:13 AM

Oh, also I have noticed that sometimes eating gluten free junk food makes me feel better. Weird, huh? Cannot explain it, but again, I believe it has something to do with my liver.

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 5:02 AM

So for now I am eating more beets, taking flax seed oil before meals, probiotics and thinking of getting more bitters in . Please keep in touch - I want to know how things are working out for you.

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 4:55 AM

You know, I have encountered two types of celiacs. One type says, "I have been gluten free for one week and feel wonderful, I feel better than in my youth!" The second type, like me, has developed all kinds of complications after going gluten free. But I have to be honest - Paleo has alleviated many other symptoms, and I do not feel as bad as I used to. So I am not switching to any other diet, definitely. However, I feel something is missing and somehow it is connected to my liver function.

87f26cf235a0e2420e28779113b0257b
1092 · April 14, 2012 at 1:11 AM

Google ulcerative colitis and helminthic therapy. Then pubmed Graham Rook, Joel Weinstock and David Pritchard and start reading.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:17 AM

So helpful! I never thought of it like that before, but it is true that I developed all of these complications after I became gluten free! Please update me on the new plans- I am seeing a naturopath next Wednesday, but she told me over the phone today to just stick to bone broths and meats the next few days. I feel like the suppository that the gastroenterologist gave me is making this worse!! This is so depressing. Thanks for your help!!

Ce41c230e8c2a4295db31aec3ef4b2ab
32518 · April 13, 2012 at 10:15 PM

Second the Vitamin D. My asthma totally disappears at 80 ng/ml, so I do recommend aiming higher, if lower levels don't help. Make sure you are also taking Magnesium (a chelated form) and getting sufficient A & K.

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4 Answers

2a01aeff01392a730bf32c7dbea99d4e
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20 · April 19, 2012 at 6:37 AM

I have ulcerative colits. My life was pretty miserable, switched to Paleo and the SCD (specific carbohydrate diet for chron's and colitis) in May. My symptoms dramatically improved to the point where I could live a semi-normal life, but while it was easy for me to stay 100% Paleo, it was harder to stay strict SCD- I think strict SCD really helps for colitis, though it is hard to avoid all the little additives in random things like allergy medication, for example. Anyway I stayed Paleo, and added the auto-immune protocol, but really wasn't seeing any good results, in fact I kept losing weight from the many bowel movements a day and adding more fat, did not help anything. I tried 10 session with an acupuncturist and chinese herbals too. This helped with recharging my body tremendously. I believe I had some adrenal fatigue and this helped tremendously with balancing out my body and supporting my liver functioning. Unfortunately my colitis didn't really improve much. After another scope in December, my disease had progressed and I ended up going on meds, which I had actively avoided for 2 years. I feel so much better now, and all I can say is that sometimes we just need that little extra push on the healing path and modern medicine can sometimes give us that. It sounds like your issues are much more extensive, but now that my colits is under control, I feel like I am able to work with my diet more. I am at a healthy weight, and feel like my body is much better at absorbing the nutrition from my food. I am planning on doing the Leptin Reset Protocol and hope to be healthy enough to transition of my meds by the end of that. Good Luck.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 20, 2012 at 1:30 AM

thanks Dani! I will look into accupuncture. This is very helpful!

089dd41b18fbb95ebb5347cded708d98
5650 · October 01, 2012 at 12:28 AM

hi dani! i am wondering how long it took for you to see good results with scd/paleo? that's what i am doing- following both at the same time, and i am feeling better than i was, but still can't leave the house, work, or basically do anything. still have pain, urgency, bleeding, and lots of bms.

A980a13555ef30d83a0da52761606039
1
435 · April 13, 2012 at 6:08 PM

Paleo can help. Check out Robb Wolf's autoimmune protocol. Another good option is the GAPS diet - www.gaps.me - GAPS provides a great process for healing from autoimmune disease including things like bone broth and fermented veggies.

All autoimmune diseases will also benefit from Vitamin D (get your levels up to 60 - 80), LDN, omega 3/krill, and a combo of boswellia & curcumin.

Find more links & research at www.crohnsdad.com

Alan

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 6:54 PM

Btw, if you're hungry you probably need to eat more meat in general and more fat in particular.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:37 PM

Great! Thanks guys, I am doing a gaps type protocol/ scd but I am so hungry ( I teach fitness and yoga classes so I am pretty active) I love healthy eating, so it kills me to not have Any fruits or veggies.

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 7:19 PM

And to avoid any misunderstandings, I think 80ng/ml is in unsafe territory. Vitamin D did nothing for me, I developed UC only after having supplemented with it for a year (>50ng/ml). Retinol is essential to protect from D toxicity. http://blog.vitamindcouncil.org/2012/01/25/new-study-vitamin-d-levels-of-the-maasai-and-hadzabe-of-africa/

2870a69b9c0c0a19a919e54cb3a62137
1515 · April 14, 2012 at 6:50 PM

http://bit.ly/HIwXeD

Ce41c230e8c2a4295db31aec3ef4b2ab
32518 · April 13, 2012 at 10:15 PM

Second the Vitamin D. My asthma totally disappears at 80 ng/ml, so I do recommend aiming higher, if lower levels don't help. Make sure you are also taking Magnesium (a chelated form) and getting sufficient A & K.

F5a0ddffcf9ef5beca864050f090a790
0
15400 · April 13, 2012 at 5:57 PM

I am going to give you a partial answer. Partial, because I am in the same boat.

  1. I was diagnosed with celiac. Went gluten free and... developed all kind of food allergies. Lactose, grain, legumes, nuts, citrus... you name it.

  2. Went on Paleo. Got a terrible fatigue and more food sensitivities. Developed leaky gut (not as a result of Paleo, but it was just not noticeable before).

  3. Was diagnosed with gastric erosion. As far as I see it now, it was an autoimmune gastritis. The doctor did not know about it. Prescribed PPI.

  4. Went off PPI, against my doc to beat the fatigue. Started Terry Wahls (strict Paleo). But fatigue and constipation (severe) remains.

Okay, so now here is my take on this. Before, when I was eating gluten, my body had something to attack. Now, when I am gluten-free, it attacks everything it wants. That's autoimmune for you. It attacks my stomach lining, my liver, other things.

Okay, my solution:

I went to a Chinese medicine guy (who does herbs) and am looking for a good naturopath. Food only is not the answer at this point. I will let you know how it goes. If the stuff they prescribe is going to help, I am going to recommend you do it too. If not, we will figure it out somehow.

Don't ever give up!!! You are not alone!!! Hang on!!!

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 5:13 AM

Oh, also I have noticed that sometimes eating gluten free junk food makes me feel better. Weird, huh? Cannot explain it, but again, I believe it has something to do with my liver.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:40 PM

So funny! All u have wanted in the last few days is gluten free granola.it may be bad but I have given in because I am so hungry! I hate not being able to eat fruits and vegetables during this flare! Your point is so true about the celiacs. Let's keep in touch! I will let you know how my appt goes on Wednesday with new naturopath!

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 5:02 AM

So for now I am eating more beets, taking flax seed oil before meals, probiotics and thinking of getting more bitters in . Please keep in touch - I want to know how things are working out for you.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:17 AM

So helpful! I never thought of it like that before, but it is true that I developed all of these complications after I became gluten free! Please update me on the new plans- I am seeing a naturopath next Wednesday, but she told me over the phone today to just stick to bone broths and meats the next few days. I feel like the suppository that the gastroenterologist gave me is making this worse!! This is so depressing. Thanks for your help!!

F5a0ddffcf9ef5beca864050f090a790
15400 · April 14, 2012 at 4:55 AM

You know, I have encountered two types of celiacs. One type says, "I have been gluten free for one week and feel wonderful, I feel better than in my youth!" The second type, like me, has developed all kinds of complications after going gluten free. But I have to be honest - Paleo has alleviated many other symptoms, and I do not feel as bad as I used to. So I am not switching to any other diet, definitely. However, I feel something is missing and somehow it is connected to my liver function.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 14, 2012 at 12:43 PM

I have wanted.... Sorry I phone!

F5a0ddffcf9ef5beca864050f090a790
15400 · April 18, 2012 at 1:13 PM

Oh-oh. Ulcerative colitis is not fun. I have gastric erosion, but I stopped taking medicine (the doctor did not approve it, but I am feeling better without it).My herbal medicine did not come in yet, but all of the sudden I am feeling better. Not even sure why. I have been eating veggies and virgin coconut oil, nothing else, but feeling okay. Good luck to you and let me know what your naturopath is going to say.

2a17904e3436c49530e5bedaeb06dd5b
80 · April 18, 2012 at 1:07 PM

Diagnosed with ulcerative colitis after testing were done. I had a bad feeling..... On prednisone and suppositories. Sigh. Seeing a new naturopath today, so hopefully better answers? How are you feeling?

Fe68ff8d47d89adf9cde06e16ba874bc
-1
-2 · April 13, 2012 at 6:11 PM

Find out what your triggers are, they may not just be gluten. Look up a book called "How to Eat Away Arthritis" by Lauri Aesoph, ND, its an easy read and provides an introduction to finding out what you're sensitive to so you can modify your diet for a range of issues not just arthritis. I control my Lupus with diet and exercise alone. Best of luck to you!

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