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Nephrotic syndrome - proteinemia (help is needed!)

by (952)
Updated about 13 hours ago
Created June 07, 2013 at 7:47 AM

I was recently diagnosed with nephrotic syndrome (low blood protein levels + protein in urine + elevated lipid levels + edemas on face/legs).

The underlying cause hasn't been clarified yet, but doctor suggested that I spend time in hospital to do it.

So, it could be anything, from Minimal change disease, Focal segmental glomerulosclerosis, Membranous nephropathy to even some potentially more serious conditions.

Bur regardless of this, I wanted to ask if you have any ideas on potential triggers or potential things to try to manage it naturally.

I guess if an underlying condition turns out to be of an autoimmune nature, it could be helpful to try autoimmune protocol? If you have any experience with the same problem, please, share what worked best for you! Also, what are the most important things to ommit during autoimmune protocol (nuts? eggs? nightshades?). I mostly eat paleo with an exception for dairy (which I seem to tolerate well) and potatoes, white rice and buckwheat. I also used to supplement with creatine, whey and glutamine, but now stopped it.

Any ideas are highly welcome!

Thank you very, very much!

Be157308a0438e382b88d9db4c12ab30
622 · February 06, 2014 at 6:56 PM

Do you have diabetes?

B121fdbc1aaa6130f5bda3bf84e3ba2d
952 · July 25, 2013 at 12:00 PM

In my case, it turned out to be FSGS. Unofrtunately, there are not many options to chose from in terms of treatment... But as it is autoimmune, probably it is also helpful to support it with autoimmune protocol. Altough, I'm afraid that there is no clear evidence of its effectiveness in such cases..

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3 Answers

29ae23ccd055da12b58665f1bcdbfb3b
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0 · February 06, 2014 at 3:25 PM

I have had Membranous Glomerulonephritis for 16 years with minimal change and it's just starting to progress. My nephrologist wants to start me on immunosuppressants. I have zero desire to take them, as I'm worried about the long term effects of them. I have been 80/20 paleo for the last year but now considering the autoimmune protocol. Did you try this for your kidneys? Did you have any results you could share? @john11

29ae23ccd055da12b58665f1bcdbfb3b
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0 · February 06, 2014 at 3:25 PM

I have had Membranous Glomerulonephritis for 16 years with minimal change and it's just starting to progress. My nephrologist wants to start me on immunosuppressants. I have zero desire to take them, as I'm worried about the long term effects of them. I have been 80/20 paleo for the last year but now considering the autoimmune protocol. Did you try this for your kidneys? Did you have any results you could share? @john11

329da96266cc89ea720d54d5b976a427
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0 · July 24, 2013 at 6:13 AM

Have you received any info from anyone. I have a 6 yr old with minimal change.

B121fdbc1aaa6130f5bda3bf84e3ba2d
952 · July 25, 2013 at 12:00 PM

In my case, it turned out to be FSGS. Unofrtunately, there are not many options to chose from in terms of treatment... But as it is autoimmune, probably it is also helpful to support it with autoimmune protocol. Altough, I'm afraid that there is no clear evidence of its effectiveness in such cases..

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