I had anti body test against TSH receptor and it's positive so I must have Grave's disease. And I have a different anti body test (also thyroid related), sorry cannot remember the long name, but it's surprisingly negative.
The concerned me most is that when my GP first referred me to the specialist in hospital, the specialist basically trying to use RAI immediately but I refused to follow rather I preferred the medicine therapy...
The doctor and GP who referred me seems not too happy about it and they keeps telling me, it's ok you take Carbimazole now but most hype thyroid patient taking Carbimazole ends with hypo anyway, so why not use RAI now and just take one pill a day for the rest of your life... I am not happy with that, so I insist that I want to go on with medicine therapy.
But even for medicine therapy, all I am getting is carbimazole...Nothing more. After having carbimazole for about 3 month, my T4 have seen steady dropping (test every 2-4 weeks). Initially it’s slow but now it seems to be dropping very fast, see below: T4: 48->45->39.9->20.8->12.8 (normal rage 10- 21)
THS: No noticeable change, always < 0.01 or < 0.03
I have started seen the specialist when I got my reading from 39.9... And the Carbimazole dosage was 20mg, after 4 weeks my T4 reading is 20.8, the specialist surprisingly want me to increase my Carbimazole to 25mg saying my T3 and T4 are just about to go into normal range but they are NOT low enough, so hence I must have increase my daily dosage to 25mg.
Then I had my latest T4 reading 12.8 just last week after having Carbimazole 25mg for another 4 weeks, now it's to the lower end of normal range as 10 is lowest normal range, but this time the specialist only want to reduce my Carbimazole by 5mg saying you should have 20mg a day and keep it that way without tell me anything else at all.
Also regardless 25mg or 20mg, that seems to far too much then the maintenance dosage mentioned in this forum (5 to 10). And the specialist will not see my again in 4 weeks & I am really really worried that I will go hypo if I keep 25 or 20 dosage for another 4 weeks...
Please help me advice what's the correct should I on at my current stage ?