After doing some diet/symptom comparisons I figured out that mthe numbness/tingling I was having in my right hand and foot was being triggered by my dark chocolate and butter consumption (a traumatic discovery- particularly the chocolate!) A little more research lead me to the discovery of gluten cross reactors (PDF).
I hoping to hunt down a few more issues that I have-I'll be doing an eliminating diet with each of the common cross reactors in the hopes of clearing those last little issues up.
In the meantime I was wondering how many other people have discovered that they are vulnerable to gluten cross reactors? What are the common symptoms that you have when exposed?
Some common cross reactors include:
-sorghum. -corn. -etc.
Chris Kresser's list goes like this: * alpha-casein * beta-casein * casomorphin * milk butyrophilin * cow’s milk * american cheese * chocolate * coffee * all cereal grains * quinoa * amaranth * buckwheat * tapioca * rice * potato * corn * sesame
He also promised a whole post on cross-reactivity a few months ago. It's a very interesting topic. Although I think the main point here is the question of how cross reactivity affects the healing of gut lining when wheat is not present. Does it cause a slow down, prevents it entirely, actually causes similar damage or has no effect? Because in the latter case - once the gut has healed - all cross reactivity would cease. But with the former it's pretty much lifetime avoidance.
My gauge is whether or not a food puts my sacrum 'out' of alignment. This is a subject that does not have very much research put into it but I think it is quite important. When I am out of alignment, my sleep is not as good, anxiety and irritability increase, pooping is not as good, and digestion is also not as good.
The following things I am quite sure will put me out... boxed coconut water (but not fresh stuff), coconut milk (probably guar gum), orbit gum (aspartame), chocolate (even 85% dark), all things gluten, and one particular type of gluten free pizza. Basically anything processed.
I've seen home gluten tests on coffee (and tea) that were positive. Chocolate does not test well. There are several sites that share gluten test results.
One is Juno and it serves the Raleigh, NC area. Another is http://www.glutenfreewatchdog.org/ Both of these sites are fee based.
Another (no fee) is glutenzap. The demographic there is extremely sensitive gluten intolerants. There's some discussion of the concept of cross reactivity there, as well.
There may be other sites using gluten test kits; these are just the ones I know about.
I think Dr O'Bryan is doing a great job of getting the word out about gluten sensitivity and celiac. But I don't think that the idea of cross-reactivity is backed up by science yet.
I think very small amounts of gluten are more likely to be the problem, or possibly some other sort of contamination. For example, do you know that coffee is generally packaged in sacks made of hemp? Hemp is almost always cc'd with gluten. I know people who have problems with coffee unless they wash the beans first. Is it gluten, is it hemp? I don't know, but it doesn't seem to be the coffee itself. I don't drink coffee, but if I liked it, I would try washing it first!
The only thing on that list that i consume is decaf coffee and chocolate. I cut out the coffee 2 weeks ago and I am sad to say I can tell the difference. However, I still have a piece of chocolate or two a couple times a week. Not sure I am consuming enough to see a difference.
Do you think that you can reverse some of the cross-reactive sensativities once you completely heal the gut. I know you cannot reverse celiac but what about the cross-reactivity.
I have a reaction to most chocolate, but not to certain chocolates that are ELISA-tested to be gluten free (and thank god for that, because I thought I was going to have to give up chocolate forever).
I also can't tolerate most dairy products (but sometimes I can tolerate ice cream from particular dairies, making me wonder if gluten is getting through to the milk, like it has been shown to in humans).
Coffee is also off-limits for me.
I've been ok with ELISA-tested gluten-free, alkalinized corn.
Amaranth and quinoa require more testing but seem to be ok.
I've had a reaction to ELISA-tested gluten-free buckwheat, but would need to test it again to completely rule it out.
I recently went gluten free and quickly discovered corn was a major cross-reactor for me. I did try organic blue corn without a reaction (I think). I also react to gluten-free oats, buckwheat, and coffee (so far. I'm still testing out common cross-reactors). After eating only 100% gluten/corn free items tonight (as far as I know anyway- I called all manufacturers, but most of it was fruits/veggies which I washed very well), I am having a mild reaction. I'm thinking it's the coconut milk which is corn/gluten free, but I read that some people react to coconut. This would make me very sad because I've been dairy free since the age of 4 and soy free for a few years now. Almond milk is out since nuts give me cold sores. That leaves rice milk (which is another possible cross-reactor) and my usual flax milk (which I love and really hope I continue to tolerate). So frustrating!
Update to cross reactivity thread: I posted this some time last year, but neglected to updated that my apparent chocolate and coffee sensitivities now seem to be resolved since I acquired mycotoxin (mold toxin) free sources. You might want to look into this as a potential source of some of your cross reactivity, since mold is a major part of the industrial production of coffee, many chocolates and corn. Mold exposure is also known to exacerbate gluten snd casein sensitivity. on my phone or I'd supply links. Check out dave Asprey's take on mycotoxins. It's worked for me.
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