Ever heard of Sulfur Oxidation problems? My well-known Osteopath has not and doesn't appear inclined to do any research on her own. (Her treatments have not helped me so far, 4 months in).So now, Dr. Google has diagnosed me and I am thinking of buying in.
Although I believe my tummy troubles started with a over the top dose of the antibiotic Levequin (thanks mother in law!), my symptoms really hit the fan when I started paleo (I was mostly vegetarian SAD:mac and cheese/toast for 5 years before). I started eating tons of meat, tons of greens, and tons of broccoli, onions, garlic, etc. (Basically a ton of sulfur rich foods).Basically I have leaky gut, leading to food intolerances, leading to gas/bloating/constipation/rumbly stomach/inflammation/joint pain from hell). Yes, I have been tested for damn near everything and tried everything from probitiocs (good bye 1K$) to autohemotherapy to acupuncture and much more.
So why on earth do I think I am having a poor sulfur oxidation problem? (often confused with sulfite intolerance). I have an allergy to sulfa drugs, a hair test showed sky high levels of sulfur, and not eating the high sulfur foods (except meat..which apparently comes with all the necessary stuff to make the oxidation process go well) had been the very first improvement I have seen in 3 years. (0 inflammation, for the first time I can touch my ribs and stomach without pain, 50% less on other symptoms).
So why not just stick with it and let the results speak for themselves? Sulfur, unlike gluten, is necessary and healthy. By avoiding those foods I could risk further health complications. Any feedback would be great!! Thanks!!
Interesting not sure how the whole cause and effect thing comes into play here.
Ie: just because my farts reek of sulfur does it mean sulfur containing foods are the problem or is it actually the bacteria themselves that our the problem and if so what is "feeding them" - is it necessarily sulfur rich foods?
Ie: i seem to get bad farts from high fibre foods so can't be certain sulfur is a factor or not.
Levaquin, cipro, etc cause the issues you describe. I personally am 3 years out of a cipro reaction and still suffer from aches, muscle and joint pain, and twitching. I don't know if the sulphur oxidation is related, but I know many sufferers of FQ damage have similar issues.
I would love to correspond with people about this. I had years of taking anti biotics, steroids and pain killers. Then when I tried to eat some raw garlic it totally knocked out my stomach and gave me awful headches and nauseau (i take allicin capsules with no problem). Then my stomach felt weak and dodgy for a bit and then I had some raw cabbage juice for a few days and got a terrible cramp in my stomach (maybe coincidence) but I ate nothing else that could have caused it. I feel as if I have a stomach ulcer but my doctor said she thinks not. I would like to drink cabbage juice to help it but dare not. Unless I drink small amounts during the day. The glass I consumed last night was bigger and it was this morning I had the terrible stomach aches. So maybe it is important to have a smaller "dose" and always follow it with some food and never before bed. Please share your thoughts. You can write to me at firstname.lastname@example.org.
@Senneth Okay, I might be able to help. I am 31yrs old Male. I was diagnosed with Crohn's Disease when I was 19 and that was after having surgery to save my life. I know for a fact that you need a decent amount of vitamin C to absorb sulfur and I know that a good Whey Protein or just some good Amino Acids but more than just the BCAA's will get you mostly back to whole. I can tell you from my own experiences that this works. AND I can say I am so happy that you realize sulfur is so important. I take a ton of it, I mean like 20-30 Grams a day. Yes, Grams not mg. And I have gone from almost dead (not in the least bit exaggerating) to healthier than most around me. And for almost 10 years have been off all meds and I continue to get healthier, and have no signs of disease. After you recover from this (and while) make sure you eat the right amount of calories for your day and make sure that you balance your diet. The food pyramid works. A balanced diet is key. My suggestion would be if you do have food allergies that you supplement what you cant or wont eat. And 1 last tip, our bodies have a spiritual side as well do not neglect it. You can contact me (or anyone who needs help) at email@example.com
I have been diligent in studying health and nutrition for over a decade and I have a friend who knows stuff I dont. So one way or another you can get help. And you would not be the first person out there to overcome a disease many have gone before you and overcome. Dont lose hope.
I have this too along with mthfr mutations and I can prove, I did NOT have this prior to taking an antibiotic. When your system is shocked in such a way, scientists have proven genes pathways are blocked, and can cause mast cell issues, allergies, toxin build up etc. Sulphur CBS issues is one that is COMMON after taking statins, antibiotics etc. You can also be born this way, in which case it is permanent. You CAN reverse the obstructions via diet supplements. I am working on mine now and am 70% recovered. Not easy but so worth the cost. Heavy exposure to metals, toxins etc can turn off genes that use vitamins minerals and foods to support your system, never doubt it, if you do, google it or call a genetics dr.
@meghurley - this is so interesting. I was quite healthy until I picked up an amoeba in Malaysia and there followed 6 or even 7 courses of antibiotics, including Cipro and Metradinazole amongst others. From what I have read sulphate reducing bacteria are resistant to both those antibiotics, so I think they have massively overgrown in me causing huge problems. I would be INCREDIBLY interested to hear how you are reversing your issues. I suspect I also have CBS and MTHFR mutations but not tested yet - in process. I'm also mercury toxic - unknown if this was also the case prior to antibiotic deluge. Plus I had a raised ALA liver enzyme for years afterwards, which is somewhat helped by hydroxocobalamin injections.
Hope to hear from you! Best wishes, Carolyn
https://www.facebook.com/groups/230824260340671/ Is a MTHFR gene mutation grp on facebook that is very informative , antibiotic resistance I went to this one:
Each person is like a snowflake :) But i suspect if you have metals toxin you more than likely have Candida overgrowth too. I am working on my GI, all organic I use marhsmallow root, monolaurin for the candida w Olive leaf and 1o strain probiotic. Ah, Ox bile and enzymes for digesting and gallbladder. I also use Liposomal Vit C daily. As for the SUOX CBS sulphur issue in progress :)
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On another note i do NOT self treat it only got me to a point..., I see Dr. Jess Armine via Skype and he is sending me to get 23andme as well so we can treat this the right way (via foods etc) but the right steps at the right times :) He has had great success treating illness from IBS, GERD, Toxin, and MTHFR in people.
So--I have had problems for years-horrible vomiting and nausea from garlic is how it started, but now I can't eat onions, (and everything in garlic and onion family), eggs, dairy, broccoli, and beets. I am very careful to eat organic fruits and veggies, and all grassfed organic etc meats. this all started after a ridiculously long prescription of antibiotics that was based on a misdiagnosis of bronchitis (i'd just moved to NYC and was responding to the air there--allergy meds took it away in two days). ANYWAY i am a health nut and a great cook now because of all of this, so that's the silver lining. However, I"d love to solve this, and I've just come across this stream and related ones re high thios, sulfur oxidation, mercury poisoning etc. It is so much info. Can someone help me? Here's what I've got:
1. do a genetic test on 23andme and then put results through geneticgenie or the other similar website. what am i looking for here?
2. test for mercury. blood? urine? hair? where do i test hair?
3. test for other metals? which?
4. test for cysteine? is that right?
5. is there a probiotic i can take that helps with sulfur oxidation?
6. what do i do if any of these are positive results?
7. is there anything else i should test for?
i extend my gratitude in advance for a comprehensive and organized answer so I can start this part of the process.
ps i went to a western dr who told me my severe bloating was due to swallowing air. I went to a hypnotherapist who specializes in food allergies who told me that i def had a biological problem, not a psychological one. I went to an acupuncturist/chinese herbalist who told me that he found evidence of garlic/onion allergies in ancient texts and there was NO recommendation for it except not to eat them. I have not tried NAET. But I have a feeling that this oxidation thing might be the root of my problems.
Best to all and best fortune with nourishing yourselves in every way!
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