Oh its real alright. I have Pyroluria, it took me 8 years to work out what caused all my symptoms, these symptoms included:
- Brain fog
- Poor concentration and memory
- Chronic fatigue (really adrenal fatigue)
- Digestive issues
I've known for a year that I actually suffer from Pyroluria and it took a bit of working out but the Pyroluria supplements have turned me back into a normal person. I tried so many different treatments before I was diagnosed with Pyroluria.
It's not just zinc and vitamin B6 I take. I also take other supplements such as P5P, manganese, Evening Primrose oil, vitamin b3, biotin, vitamin E, vitamin C, magnesium, vitamin D to name a few.
I believe the condition is life long and cannot be 'cured'. But I would be very happy to be proven wrong on this belief. Seems genetic to me from what I have read and see in other family members.
I also think it is best to not go untreated as it leads to copper buildup in your body, from the low zinc levels.
I blog about living life with Pyroluria at: http://pyrolurialife.com