Thank you for your thoughtful reply and clinical thoughts about working with ASD patients. Personally I find them extremely valuable.
What percentage of kids you worked with had nutritional/gut/metal management? How many failed/succeeded? What success/cures have you observed?
For my niece, I am so grateful for all the resources, links, GFCF paleo-friendly thoughts we've been lucky to secure -- including PALEOHACKERS where I get a ton more RELIABLE MEDICAL info >>>>>>> conventional-medicine.
sigh I agree with actually all of your lifestyle and diet recs but why the VITRIOL? I sense your frustrated and so am i...
We're just hacking here and using the honest science (versus Pharma or bad science) ...I like sharing my experience because I know it is helpful for many 'in the dark'. I'd like to apologize if you think something I said is false or inaccurate...
My sister read half a dozen'autism' themed books.. NONE discussed metals or any attempts at gentle, oral chelation or full attempts at juicing (which is chelation+digestive enzymes+vitamins). She actually read McCarthy's (I just listen to my sis) and distinctly recalled that chelation was not discussed at all. My thoughts on IV chelation are sort of like yours -- I don't like them though I have met numerous people in the Bay Area who had wonderful experiences (20 yrs ago). My practitioner cautions that IV chelation has plastics which some individuals absorb and become toxic on. Additionally they are probably strong and definitely stronger in efficacy/potency than herbals/nutraceuticals like some good oral chelation, like the product we use.
Can you check this one out? What are your clinical thoughts? http://www.extendedhealth.com/products/1-heart-plus-detox-oral-chelation.aspx
It has been used for >> 10+ years in physician and practitioner's offices; developed by PhD nutritionist expert and physicians. We've been on this collectively (my whole family, my sister's whole family incl kids/baby) since June.
Unlike you,I few direct experiences other than n=1, my niece our optimistic 'cure'. Our practitioner OTOH has many and like 'paleo diet' trials, I am very optimistic about the clinical prospective controlled trial by Dr. James Adams PhD who showed that treatment with DMSA oral (a chelator) and glutathione was safe, produced few adverse effects and effective. For those with the most metal/mercury excretion measured in urine, behavioral improvements were the greatest, even to the degree of first-time speech in this subpopulation who were previously without speech.
Adams provides good clinical tips here which I have found super helpful: http://www.autism.com/pdf/providers/adams_biomed_summary.pdf
I don't watch cnn (or fox) as most media is bunky IMHO particularly I've found when Big Pharma is involved. Accuse me of being skeptic!!! There are other view points which I have considered. http://www.thehealthyhomeeconomist.com/2011/01/autism-fraud-researcher-a-victim-of-yellow-journalism/
It is interesting to me that you bring up Dr. McBride Campbell who reviews the pertinent and relevant MMR (including Wakefield's) positive associations, as well as discussing the elimination of heavy metals in her protocols. She is very clear how to go about doing 'safe' vaccinations in kids appropriately evaluated to prevent vaccination related adverse events (e.g. autism, immunosuppression, etc). Healthy parents, healthy kids -- single vacc at a time and none at birth. Unhealthy kid, unhealthy parents, NO VACCINATION until healthy and then only single antigen at a time after thorough evaluation...(no vacc at birth as neonate has no/immature immune system and superleaky gut)
Your stance seems odd to me that you support GAPS but don't appear (to me) to support Dr. McBride-Campbell's evidence (vacc, metals, toxins) presented???
Regarding Alzheimer's I've looked at the research in detail. There are no disease modifying treatments what so ever current at this time. What is working in clinical trials are CHELATORS OF IRON. Many of these chelate iron, but upon examination, these chelators ALL ALSO CHELATE MERCURY AND ALUMINUM. Aluminum has long been associated positivly with apoE4 and early onset and random Alzheimer's. http://www.ncbi.nlm.nih.gov/pubmed?term=alzheimer%2C%20iron%20chelation
The association between metals/aluminum and Alzheimer's is becoming stronger and stronger in the literature, though you appear to not have heard about it at all. We all have FAR MORE MERCURY than aluminum due to mercury amalgams, the processing from high-fructose corn syrup, and the heart-healthy-eat-fish-but-not-if-preggers AHA campaigns.
There are even noted paleo high sat fat cardiologists pointing out the link between "Mercury Vaccines and Autism" (scroll down): http://www.donaldmiller.com/
Kind regards, G