I'm a 22yo female with myelodysplastic syndrome and was started on a course of 60mg prednisone 3 months ago which has successfully been treating an autoimmune condition that was attacking my bone marrow(yay!) I'm now being tapered off -currently at 15mg and have been struggling with the withdrawal symptoms (boo!)
I've had all the usual side effects of prednisone; the cushings syndrome, acne, bloating, moon face, mood swings etc but up til now i had tons of energy (the only good thing about the drug) and now the dose has been lowered, i literally cannot get out of bed i'm so exhausted.
From the moment i wake up, i find it extremely difficult to get out of bed and have been feeling very depressed. I've tried making myself go for walks or just sitting outside more often but it doesn't seem to be helping with my energy levels at all. i actually miss being on 60mg of steroids and waking up at 4am feeling like i'm ready to run a marathon!
I guess I'm a bit confused about what the best thing for me to do is. Should i just give in, accept it's part of the side effects and let myself stay in bed for the next few months (which by the way is not as fun as it sounds) or is there something i can do to help myself?
here's what I've been doing: winding down at night time, low level lights, sleeping in the dark (not complete darkness though - still need to get a blackout blind) i wake up around 5am, then sleep again at 7 til about 9.30. have breakfast (eg, bacon omelet) and take my steroids, then a small snack around 11 (eg, some leftover meat) with an emergen-c (1000mg vitamin c), lunch at 1pm (eg, chicken casserole with bone broth) and vitamins - d3 4000iu, 1g fish oil. i take another emergen-c sachet about 4 and for dinner i usually have a steak with vegetables or sometimes sweet potato. then i take a magnesium/calcium supplement before bed, start to wind down around 8. asleep before midnight. my carb intake is around 80g a day (i have PCOS so want to prevent insulin resistance but don't want to go too LC either and add stress), i eat mostly fat (about 60-70% and mostly coconut oil or goose fat in cooking.) i have recently upped my sodium intake a little to see if that would help (it hasn't.) i've also been trying to chill out as much as possible, watching comedies and doing things that relax me.
Are there any other hacks i can make to my diet/lifestyle to help ease these withdrawal symptoms, get some energy and help heal my adrenal glands? thank you for any advice... and sorry for the long post.
UPDATE: For the past 5 days I have made some changes and am quite pleased with the results. As soon as I wake up in the mornings I get as much sunlight as I can. I've upped my vitamin D supplementation. I try to spend the majority of the sunlight hours in natural light or outdoors, going for walks etc. I admit I had to really push myself to get out of the house more at first, but now I'm feeling better for it. I am planning on buying a blackout blind but for now I have been wearing an eye mask and have had better sleep. I've got a lot more energy during the day, although I'm still a bit tired and my mood has been MUCH much better. I can safely say I feel a lot less like death :)