Female, 40 years old. PCOS, 5'8, 208 pounds. Big muscles, big stomach. I'm on metformin and BCP for PCOS. I take ambien for sleep. I've had two sleep studies done--1 diagnosed me with insomnia (duh), the other said RLS. I sleep great with the ambien, but I don't sleep much at all without it. I've been on all of these medications for years. Nothing new.
Low carbed, mostly Paleo from February 2011 to November 2011 (lost 40 pounds and then fell off the wagon, gaining 20 back). (I've low carbed off and on for the past 10 years--just recommitted) Around September, my hair started falling out and my scalp started burning. When I fell off the wagon and started eating a bunch of carby stuff, my hair stopped falling out and actually started growing back in. and the burning stopped. Well, two weeks in to lower carb again and my scalp is on fire. No shedding yet, but I'm sure it's just around the corner.
I've researched enough to know that some say low carb can cause thyroid problems. I've also researched enough to know that some people think that's hogwash. Of course my doc only runs the standard tests that come back fine and she thinks I'm producing too many androgens and there's nothing we can do about that. Is this a thyroid problem/a hormonal problem/something else? It's driving me batty.
You can balance your hormones by fine-tuning your nutrition. You'll be able to ditch all the meds, too.
Are you eating 100% Paleo or Primal? What kinds of foods?
Many women are deficient in Zinc, Magnesium and Vitamin D, (as well as Selenium and Manganese.) All are required to get your hormones back into balance, which will help your weight loss and probably eliminate your PCOS.
It takes patience--6 months to a year to see significant changes, from what I've seen in my clients.
sounds very uncommopn. so uncommon you may never find the reason. you may have an inborn error of metabolism not discovered. You may have also developed some allergey. go back to eating the way that keeps your hair. No telling what damage is being done where you dont notice.
Does the burning show up when you are losing weight/are lowest in your carb intake? The pores on our scalp (and pores in general) are a route of detoxification. Our adipose tissue can hold onto all sorts of environmental toxins that become mobilized when when we start to lose fat, and I bet that could cause a burning sensation.
I have a theory that many of us with PCOS are ApoE 4 carriers who hold onto heavy metals at greater rate than others, making that mobilization even more unpleasant. I bet adding the starches slowed the rate of weight loss, and reduced the heavy metal poisoning. Slow and steady, with a small serving of starchy roots might be easier on your system.
I also read recently on the PCOS newsletter that I get, we apparently have stickier and more copious scalp oil than the population at large which can mess with hair growth too.
This link might provide some more ideas for you too: http://www.ovarian-cysts-pcos.com/female-hair-loss.html
I've had several bouts of hair loss with PCOS, both times it seemed to stop when I remembered to eat more liver, I was anemic both times. It is hard to troubleshoot, I hope you figure it out.
For those with burning scalp read: http://www.ehow.com/about_5447789_burning-scalp-syndrome.html and http://www.rightdiagnosis.com/sym/scalp_burning_sensation.htm
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