I was curious how accurate people found Enterolab, how many used it, and how helpful it was?
My husband and I did the testing for different reasons. I was barely symptomatic but some occasional constipation IBS type issues.
My husband had celiac like symptoms and more: brain fog, allergies, snoring, nasal congestion,fatigue, diarrhea, belching, gas, bloating, abdominal distention, abdominal pain, hives,back rash (suspected dermatitis herpetiformis).
We had just started Paleo and he argued with me that he didn't have gluten issues. We spent $6000 on medical bills that revealed no diagnosis except "food intolerance." and hubbie was sick of testing and refused endoscopy. His blood TTG was normal.
The Enterolab results sealed the deal for us to go Paleo (but with dairy) for life. It was an objective measurement.
The hubby had some eye-opening stool results: normal casein results- no issues with dairy
no celiac genes BUT
very elevated fecal antigliadin Ig A, barely elevated TTG, and high fat malabsorption response to soy and yeast
The recommendation was a strict and permanent gluten-free diet due to an autoimmune response.
He used to have cross-contamination gluten and nightshade symptoms for about a year on Paleo (experimenting with LC, VLC, finally settled on PHD with raw dairy) but now he's fine with cross-contaminated gluten and nightshades. We never consume open sources of gluten like bread, pasta, etc. so it makes it much easier when traveling/eating out.
My understanding is that if he was a true celiac he'd never be able to tolerate cross-contamination, but when were at Rob Wolf's last seminar in Boston he said there were like 8-9 types of TTG, and conventional testing only tests 2-3 types. There are a lot people with severe gluten issues then conventional (including celiac) testing would never reveal, so many types of unnamed gluten diseases.
We believe my hubby had some celiac-like gluten response for which there is no proper name yet.
The Enterolab results make sense and we don't believe it was a false result. I was carrying gluten sensitivity and celiac genes and just recommended to be gluten-free. My stool testing and casein was all normal.
When we did the testing they didn't have options for testing rice, corn, oats, potato which they now have - would have loved to do that at the time!
We're just grateful that Enterolab and Paleo we did at the same time. I was sort of a control but the results convinced him going Paleo was the only way during holiday season last year!